Not asking for help, stagnation and neurodegeneration

United Gnosis

Jedi Council Member
I feel like I've been pushing this back way too much, but I have nobody to blame but myself - I've considered asking for help for over a year, I've even had this title bouncing around in my head since last summer, as I tried to gather my thoughts, to figure out how to even approach the topic in the first place, I've been pushing back asking for help and just struggling through, I'm sorry I can't edit this any better.

So, mods, feel free to move this thread to the swamp. I intend it to be about a question about specific neurological issues, but I'm still struggling to articulate it so I guess there's going to be personal baggage too, so please bear with me -

For context, in 2019, I thought I was in the best shape of my life. I'd moved in a urban apartment in 2018, decided to start running on the nice path close by and signed up for a half-marathon ultratrail in fall (which I did, just barely, but still, I trained 4 months and ended up running 16 miles cross-country) and then in spring 2019 I'd gotten a part-time job in a gym as a yoga teacher, so between this and my own practice I was doing nearly 2 hours of training daily, and definitely didn't feel like a gym bro, but at least like I'd made up for my basement-dwelling teens. Just a non-braggy, this is the best shape I've been in, and intend to keep caring for it.

Boy, how quickly did that change. I wouldn't jump to call what I have as a terminal illness, nor did any of the doctors I met with in the last year call it that either, but it sure feels that way. Basically, I can barely move, to the point where I often catch myself grimacing and grunting just to effect basic movements, 6 months ago I had a hard time stopping myself from grunting in the stairs, now I'm at that point just from standing up and reaching the door. It's like the legs are foggy and the hips wobbly, with your movements lagging behind where you think they are, add a uncoordinated factor because it's like you never know if 10% or 30% of your mental effort is going to get through as a signal, so you're always undershooting, overshooting, re-compensating... straining your willpower like you're trying to lift a hundred pounds, yet barely managing to walk. It wasn't as bad a year or two ago, but it's progressing fairly quickly, considering I'm nearly totally debilitated, I can still kind of walk by constantly bouncing from one arm support to another, but even though I had good shoulders, they're starting to pinch from straining in weird postures, and in the last couple weeks I've started feeling like they were becoming a bit blurry... Anyways.

Also, my vision has been crashing, actually that's what led me to consult in Fall '21 as I got a job opportunity, failed at basic reading tasks, got an eye test and glasses until they realized the glasses couldn't help because it's the optical nerve that was attacked - I volunteered to lose my driver's license right then (I already felt my motor problems to be dangerous, without putting a name on it), I was hoping to fix myself with a productive role but when the optometrist showed the scan of my retina, the thinned out nerves... I just gave up on that.

I feel like I'm looking at ISO 3200-6400, from those old digital cameras before noise filtering was a thing. There's like a veil of scintillating digital noise, even though my eyes see clearly and in focus, the noise breaks up contrasts and shapes, it suggests detail but at the same time you can't quite pick it up - by now, I have to zoom most UIs so much that they look like mobile layouts, getting close to that fine line between zooming up so much that you become dizzy, and even then I have to lean forward and look at my monitor from 6-8 inches away, slowly moving my head from side to side to follow the cursor...

As the optometrist detected nerve damage, I was referred to a neurologist, and also to an infectiologist because of my particular past (spending half of last decade in latin america, also got bit by a couple ticks the last time I was in Belize - it called the attention of a tropical diseases specialist). You could count the number of times I interacted with the medical system on one hand before, but over a couple months they took about 2 dozen samples, mostly blood but also stools etc, they ended up ruling parasites out (I let the infectiologist know I had spent years barefoot in central america, but came back suddenly for family matters and didn't get to take a standard course of antiparasitics since... I was trying just in case, but of course she didn't want to prescribe anything preventatively.

After those first few months of further tests, since they couldn't trace anything out of the ordinary in the blood samples, I ended up submitting to a lumbar puncture, also had a few scans including over time 3 MRIs came back which showed a couple dozen 'minor' nodules in my white matter and amygdala, as well as a couple cubic centimeter total of compromised spinal nerve, mostly at the level of the cervicals and thoracics. They couldn't quite tell and thought it looked like some atypical sclerosis, and around the same time the puncture results came back, the analysis listed presence of red blood cells (although uncounted at 0 x 10^6/L) and lymphocytes at 2 x 10^6/L. I've got access to my reports, but analysis is usually very terse, if any, but the fact it was mentioned led me to ask about it. I've been answered that was not normal, and it was basically the only out-of-norm result so far, besides from the MRIs clearly indicating something.

At that point, we were a year ago, last spring, and I received a preliminary diagnostic of neuromyelitis optica, NMO. It probably took me a couple months to integrate, even though I'd already seen it get noticeably worse over the previous year and I knew something was wrong, I hadn't admitted it was something clinical until it compromised my job opportunity, basically. It's like I knew something was wrong, but I couldn't even point out what it was, not even that I couldn't articulate it, more that I wasn't even clear about was was wrong, I just knew something was. It only made sense when I understood that nerve damage, how weird it felt when I tried to start running again in 2020, I felt like my feet were dragging even before I got tired, so I couldn't get into it. It didn't make sense that I'd lost shape so quickly so I went to train with my kettlebells but I felt as strong as ever - none of it made sense, but now it's clearer.

So the last result I got was an hematological profile, I don't know how significant it is but some results came slightly elevated:

Éosinophiles/Leucocytes slightly elevated at 0.069 (norm range 0.01-0.05)

Monocytes slightly elevated at 0.9 x 10^9/L (norm range 0.2 - 0.8)

Éosinophiles slightly elevated at 0.7 x 10^9/L (norm range 0 - 0.4)

Basically, that's not much to go on, but it's about all the data we got in a year of tests - and this brings us to last fall, and what I'm currently most concerned about. That is, by fall my neurologist told me, we can't refine our diagnostic any further, at this point we have to look for experimental treatments to NMO, there is this promising category called anti-CD20s, a class of anti-cancer drugs which have recently shown promise in suppressing autoimmune conditions similar to mine - only problem, I'd become immunosuppressive too. When the alternative is feeling like your flame is slowly going out... I thought a lot about the forum and that I should ask about it here, but the desperate part of me jumped on it. "Sure, I don't care if it's experimental, if you think that's what will work, that's what we need." He placed a request with the province's health insurer (I don't have private coverage) and about 2 months later, the request came back denied - the public insurer figured I hadn't attempted a "milder course of action possibly appropriate to [my] condition, such as corticosteroids". I made a mental note to ask here about whether these could apply/relate to my case, but then I set that aside as I tried to prepare for the holidays etc - despite not doing much, it feels like I can spend days struggling to clean and organize, but really I only push for a few minutes at a time before feeling I have to collapse back in my chair for the foreseeable future. Weeks, months start to fly by as I barely shuffle through each day...

Just last Friday I received a phone call that the request had been revised and I'd been granted a prescription for Riximyo, basically to be delivered ASAP. I was asked if I had any questions, from a prior onboarding conversation I knew they didn't proactively discuss any side effects so I only decided to ask how long is the data trail, since when was the treatment deployed - and the lady uncomfortably answered, without any certainty in her tone. "Well, it's got a good history, I mean, in Europe, I think it's been used since 2017, but in Canada I couldn't say..."

And that's basically where I'm at. Some of the eagle-eyed among you might have noticed I had a decent contribution to the forum in '20-'21. That took a serious hit in fall '21. Now you know why. I was the one reeling.

At this point, I'm late as could be. They gave me a date this Friday - it's basically a half-day perfusion, and a second dose after two weeks, the two together are supposed to collapse my immune system for a year.


And I'm supposed to think that's a good thing. And I'm thinking of taking it anyway, because even if it isn't I just don't know anymore, I certainly know nothing else.

Help me, please.
 
Were you tested for Lyme disease? The rash isn't always present, I read.

I'd suggest meditate - a lot, and maybe your subconscious could bring up what's going on. Even hypnotherapy could help in the discovery process. Also, try engaging in the Eiriu Eolas breathing program.

Best wishes!
 
@United Gnosis I am so sorry to hear of this; it is a serious condition to have.

Do what your doctors recommend.

I can offer dietary advice but please review with your doctor.
You'd want to support the nerves' myelin sheath and keep inflamation down.

A diet rich in nutrients like vitamin B12, omega-3 fatty acids and good cholesterol may help support healthy myelin production and repair.

NMO is similar to MS in its effects so I'm copying from a page for MS support with supplements:

Table of Contents
Treatment of multiple sclerosis (MS) involves using many approaches simultaneously in an effort to manage your disease and symptoms. Some dietary supplements—specifically, biotin, vitamin D, and omega-3 fatty acids—have shown promise as potentially beneficial in MS because of the role they may play in promoting myelin sheath repair and reducing inflammation.1

What Does Vitamin D Have to Do With MS?​


While supplements may be a sensible addition, they are not a substitute for your current MS therapies. In addition, they can potentially pose a danger of toxicity and interact with MS disease-modifying treatments (DMTs) or your other medications.

Given this, it's important to speak to your healthcare provider if you are interested in incorporating supplements into your care plan.
YOU CAN READ THE REST HERE, BUT IF YOU WANT IT ALL COPIED, PLEASE ASK:

I have a condition which causes systemic inflammation, difficulty walking, and weakness similar to yours. I can share what I learned about taking care of myself.

Do not push yourself past your limit! If your body tells you to sit or lay down, do so. Any pushing past your current endurance level can cause you to crash and set you back, where it is very hard to re-reach your current baseline of functioning.

Pushing past your endurace, can increase inflammation.

Stress can increase inflammation. Any stress, mental or physical. Plus things like heat and cold, humidity. Find what's comfortable for you temperature and humidity wise.

Avoid over stimulation as this can cause a cascade of symptoms...Things like loud noises, some movies, even conversation could be overwhelming. I find dim lights better and even use red lighting in the evening. Use light filter on monitor screens.

I did not see where turmeric extract was suggested but I have found it a god send on reducing pain and inflammation.
I use 2400 mg at one time dose/day good but use can go up to 12 grams per day...BUT ASK AND REVIEW WITH YOUR DOCTOR ABOUT TURMERIC. The supplement I use also has ginger and black pepper in it.

One more thing. If you find that you have excess urine frequency, I can suggest a doctor formulated herbal that works very well, reducing not just frequency but also the urgency.

I'm here if you have questions that I might answer.
 
Wow. And you wrote with such clarity about what's been happening. Words fail me but I sure pray you make your way through this and that you get lots of help!!!

As briefly as possible, in order to be of any help, I'll tell you how things went and what helped as we've been through 20 years of a kind of parallel to your situation with a very dear friend.

- in 2002 he phoned me out in BC visiting family and he had been driving and couldn't remember where he had been or where he was going.
- he was scanned at St. Mikes in Toronto and radiology called him in quickly, did MRI - 10 lesions in the caudate and basal ganglia.
- his memory was about destroyed, no idea of the date or what happened even a minute ago, couldn't walk, speech slurred.
- brain biopsy, lumbar punctures later, no confirmed diagnosis as it continues to this day.
- neurologist at St. Mikes thought Toxoplasmosis. So that's a problem with variable symptoms. Not confirmed.
- massive seizures began quickly.
What seemed to help medically: it was not anything other than, regrettably, the seizure meds, but while he spent 6 months in hospital we consulted a master herbologist (the amazing Roger Lewis from Thuna's till the store closed) and a woman who did radionics, both of whom I'd credit with his gradual return of some memory and his eventually leaving hospital to live on his own, with difficulty, with live-in help. He improved with the herbs and radionics.

The only other thing we found and he has continued seeing her is an Auricular Medicine practitioner over the years since, sometimes a few times a year, it cost money, and sometimes more frequently. The Auricular Medicine helped him continue improving. We did take him to see a famous MD who did blood tests to prescribe supplements, help detox toxic metals. With all his testing, he came up with the same basic protocol that our Auricular Medicine practitioner did by her analytic methods. So he continued with her. There was no return to normal, but many years of living on his own till last two years, now in Long Term Care.

I will add, our friend who helped so much, the Auricular Medicine therapist, who also did a lot of sensitivity testing over her 30-odd years of practice told me in all those years she tested only one person who was gluten tolerant. You may already be on a Keto diet or following other recommendations discussed here in the Forum.

The other thing is, you are capable of writing down all that you did write here. That's amazing! That is a lot of presence of mind.

This Riximyo, I looked up. It sounds like if I were you and I took it, I would use some of the protocols discussed here (herbal, pharmaceutical, homeopathic) for blood clots as well as protection for heart and liver/kidneys/lymph. You probably know all about preventative measures since you are here! I do this for ANY pharmaceutical intervention myself, always, be it antibiotics or anything. You go in armed with information.

And now I see Zzartemis's details on protocols to protect health! I look forward to reading that post in detail. This is a great thing that you have written up your situation and put it before us to respond. Much will come of this, I hope, for you!

How you'll be able to read all this that I've written, I don't know. I've edited and tried to boil it down but keep in what may be of some help to you.
 
I did not see where turmeric extract was suggested but I have found it a god send on reducing pain and inflammation.
I use 2400 mg at one time dose/day good but use can go up to 12 grams per day...BUT ASK AND REVIEW WITH YOUR DOCTOR ABOUT TURMERIC. The supplement I use also has ginger and black pepper in it.
Forgive me but there is a link to use of turmeric...It works rapidly for me...
HERE:
Some dietary supplements
 
I feel like I've been pushing this back way too much, but I have nobody to blame but myself - I've considered asking for help for over a year, I've even had this title bouncing around in my head since last summer, as I tried to gather my thoughts, to figure out how to even approach the topic in the first place, I've been pushing back asking for help and just struggling through, I'm sorry I can't edit this any better.

So, mods, feel free to move this thread to the swamp. I intend it to be about a question about specific neurological issues, but I'm still struggling to articulate it so I guess there's going to be personal baggage too, so please bear with me -

For context, in 2019, I thought I was in the best shape of my life. I'd moved in a urban apartment in 2018, decided to start running on the nice path close by and signed up for a half-marathon ultratrail in fall (which I did, just barely, but still, I trained 4 months and ended up running 16 miles cross-country) and then in spring 2019 I'd gotten a part-time job in a gym as a yoga teacher, so between this and my own practice I was doing nearly 2 hours of training daily, and definitely didn't feel like a gym bro, but at least like I'd made up for my basement-dwelling teens. Just a non-braggy, this is the best shape I've been in, and intend to keep caring for it.

Boy, how quickly did that change. I wouldn't jump to call what I have as a terminal illness, nor did any of the doctors I met with in the last year call it that either, but it sure feels that way. Basically, I can barely move, to the point where I often catch myself grimacing and grunting just to effect basic movements, 6 months ago I had a hard time stopping myself from grunting in the stairs, now I'm at that point just from standing up and reaching the door. It's like the legs are foggy and the hips wobbly, with your movements lagging behind where you think they are, add a uncoordinated factor because it's like you never know if 10% or 30% of your mental effort is going to get through as a signal, so you're always undershooting, overshooting, re-compensating... straining your willpower like you're trying to lift a hundred pounds, yet barely managing to walk. It wasn't as bad a year or two ago, but it's progressing fairly quickly, considering I'm nearly totally debilitated, I can still kind of walk by constantly bouncing from one arm support to another, but even though I had good shoulders, they're starting to pinch from straining in weird postures, and in the last couple weeks I've started feeling like they were becoming a bit blurry... Anyways.

Also, my vision has been crashing, actually that's what led me to consult in Fall '21 as I got a job opportunity, failed at basic reading tasks, got an eye test and glasses until they realized the glasses couldn't help because it's the optical nerve that was attacked - I volunteered to lose my driver's license right then (I already felt my motor problems to be dangerous, without putting a name on it), I was hoping to fix myself with a productive role but when the optometrist showed the scan of my retina, the thinned out nerves... I just gave up on that.

I feel like I'm looking at ISO 3200-6400, from those old digital cameras before noise filtering was a thing. There's like a veil of scintillating digital noise, even though my eyes see clearly and in focus, the noise breaks up contrasts and shapes, it suggests detail but at the same time you can't quite pick it up - by now, I have to zoom most UIs so much that they look like mobile layouts, getting close to that fine line between zooming up so much that you become dizzy, and even then I have to lean forward and look at my monitor from 6-8 inches away, slowly moving my head from side to side to follow the cursor...

As the optometrist detected nerve damage, I was referred to a neurologist, and also to an infectiologist because of my particular past (spending half of last decade in latin america, also got bit by a couple ticks the last time I was in Belize - it called the attention of a tropical diseases specialist). You could count the number of times I interacted with the medical system on one hand before, but over a couple months they took about 2 dozen samples, mostly blood but also stools etc, they ended up ruling parasites out (I let the infectiologist know I had spent years barefoot in central america, but came back suddenly for family matters and didn't get to take a standard course of antiparasitics since... I was trying just in case, but of course she didn't want to prescribe anything preventatively.

After those first few months of further tests, since they couldn't trace anything out of the ordinary in the blood samples, I ended up submitting to a lumbar puncture, also had a few scans including over time 3 MRIs came back which showed a couple dozen 'minor' nodules in my white matter and amygdala, as well as a couple cubic centimeter total of compromised spinal nerve, mostly at the level of the cervicals and thoracics. They couldn't quite tell and thought it looked like some atypical sclerosis, and around the same time the puncture results came back, the analysis listed presence of red blood cells (although uncounted at 0 x 10^6/L) and lymphocytes at 2 x 10^6/L. I've got access to my reports, but analysis is usually very terse, if any, but the fact it was mentioned led me to ask about it. I've been answered that was not normal, and it was basically the only out-of-norm result so far, besides from the MRIs clearly indicating something.

At that point, we were a year ago, last spring, and I received a preliminary diagnostic of neuromyelitis optica, NMO. It probably took me a couple months to integrate, even though I'd already seen it get noticeably worse over the previous year and I knew something was wrong, I hadn't admitted it was something clinical until it compromised my job opportunity, basically. It's like I knew something was wrong, but I couldn't even point out what it was, not even that I couldn't articulate it, more that I wasn't even clear about was was wrong, I just knew something was. It only made sense when I understood that nerve damage, how weird it felt when I tried to start running again in 2020, I felt like my feet were dragging even before I got tired, so I couldn't get into it. It didn't make sense that I'd lost shape so quickly so I went to train with my kettlebells but I felt as strong as ever - none of it made sense, but now it's clearer.

So the last result I got was an hematological profile, I don't know how significant it is but some results came slightly elevated:

Éosinophiles/Leucocytes slightly elevated at 0.069 (norm range 0.01-0.05)

Monocytes slightly elevated at 0.9 x 10^9/L (norm range 0.2 - 0.8)

Éosinophiles slightly elevated at 0.7 x 10^9/L (norm range 0 - 0.4)

Basically, that's not much to go on, but it's about all the data we got in a year of tests - and this brings us to last fall, and what I'm currently most concerned about. That is, by fall my neurologist told me, we can't refine our diagnostic any further, at this point we have to look for experimental treatments to NMO, there is this promising category called anti-CD20s, a class of anti-cancer drugs which have recently shown promise in suppressing autoimmune conditions similar to mine - only problem, I'd become immunosuppressive too. When the alternative is feeling like your flame is slowly going out... I thought a lot about the forum and that I should ask about it here, but the desperate part of me jumped on it. "Sure, I don't care if it's experimental, if you think that's what will work, that's what we need." He placed a request with the province's health insurer (I don't have private coverage) and about 2 months later, the request came back denied - the public insurer figured I hadn't attempted a "milder course of action possibly appropriate to [my] condition, such as corticosteroids". I made a mental note to ask here about whether these could apply/relate to my case, but then I set that aside as I tried to prepare for the holidays etc - despite not doing much, it feels like I can spend days struggling to clean and organize, but really I only push for a few minutes at a time before feeling I have to collapse back in my chair for the foreseeable future. Weeks, months start to fly by as I barely shuffle through each day...

Just last Friday I received a phone call that the request had been revised and I'd been granted a prescription for Riximyo, basically to be delivered ASAP. I was asked if I had any questions, from a prior onboarding conversation I knew they didn't proactively discuss any side effects so I only decided to ask how long is the data trail, since when was the treatment deployed - and the lady uncomfortably answered, without any certainty in her tone. "Well, it's got a good history, I mean, in Europe, I think it's been used since 2017, but in Canada I couldn't say..."

And that's basically where I'm at. Some of the eagle-eyed among you might have noticed I had a decent contribution to the forum in '20-'21. That took a serious hit in fall '21. Now you know why. I was the one reeling.

At this point, I'm late as could be. They gave me a date this Friday - it's basically a half-day perfusion, and a second dose after two weeks, the two together are supposed to collapse my immune system for a year.


And I'm supposed to think that's a good thing. And I'm thinking of taking it anyway, because even if it isn't I just don't know anymore, I certainly know nothing else.

Help me, please.

Yikes, I'm really glad you reached out. It's good to see you've been doing all you can with medical testing and finding out what your options are there.

Further to what Zzartemis posted above about diet, what is your diet and what supplements do you take?

It does sound like something that I've noticed in a few different forum members, including myself - what seems to be a general body shutdown. I think it will have been different in each case, but it's sort of like this overall metabolic syndrome where there's a collapse of the life force. That's how it felt for me, and I've seen it in other's posts. I was tested for everything from cancer to mononucleosis to Lymes, and it call came back negative.

My doctor suggested I do a sleep study, which gave me something to work with. I was under-slept, and had been working too hard and doing too much. It sounds like you were in a state of high output for a while... maybe too high. Eventually it caught up with me - that was one aspect of my situation. The tricky thing is that we can be asleep for 8 hours and not actually in a state of rest. So how is your sleep? Were you resting enough during your intense training period? And FYI, I've come to see marathons and long distance running as a good way to wreck yourself. Gaby wrote a summary of the forum's health research, and in it she states:

Not too long ago we used to be naturally slim and fit without overdoing never-ending stressful aerobic exercises. Not anymore. Now people sign up to impossible marathons just to be acceptably fit regardless of the strain to their prematurely aged joints and body, without mentioning that quite a few had dropped dead at a very early age while pursuing these activities.

Generally major health issues have a big emotional component, too. The nerves represent communication within the body and with the outside world. I don't know if that rings a bell? It's up to you, but if you'd like to share a bit more about how you're doing emotionally, please feel free to do so.

All the best to you at this time - we got your back, dude!
 
United Gnosis,
Just chiming in to say I have picked up a lot of ideas and info from your posts over the years, so a big personal thank you for your contributions.

What a shock this must be for you. I hope the advice above can help, and I hope more follows. I don’t know much about this condition or others like it, but I do understand autoimmune problems.

Coming from an absolute layman, natural anti-inflammatories can make a big difference getting through the day to day stuff. And fatigue, though it is tempting to fight, is usually an important message from the body. So I agree with those above - be kind to yourself and allow the body to calm down when it asks. And if it feels calm already, then allow yourself time to mend what can be mended. It’s a fine thing to meditate on, while there’s nothing else to do.
Best wishes, and our hearts are with you!
 
I am very sorry to hear this. You seem to me quite lucid therefore centered in your being now. With regard to your decision, along with what others have already asked, I wonder what your diet is currently, and what place fasting has. More generally, and this is not new age speculation, I personally believe that autoimmune diseases, along with heart problems, are one of the leading themes in the merging process, and border realm crossing. I wish I could say more. But I just ask. You made your centered decision. Do you have any doubts?
 
I am very sorry to read about your problem.

They have already offered you very good advice and thinking about how to help you I thought of Edgar Cayce.

Not everything works for everyone, but Edgar had read about this and about the greater assimilation of vitamin D as Zzartemis suggests, in my country some cans of cod liver are sold in supermarkets in their own oil, which provide a huge contribution of that vitamin. Without any additives, the cod liver preserved in the cod liver oil itself.

Much encouragement.




 
I think trying the new experimental drugs might be worth a shot. It has changed the prognosis of cancer and autoimmune patients for the better, and they might prevent further neurological or bodily damage. Work with your doctor and learn all you can about your condition, that way you can do the best of both worlds - complementary and mainstream medicine.
 
You are involved with allopathic medicine now, so not sure how to advise interacting with other approaches. However more and more info surfacing this last year that parasites are at the root of much, including problems with nerve sheath. Evidence is also trickling out from established cancer research that parasites are at root of cancer. So I'm thinking this line of exploration is worth looking at. I know of three useful antiparasitics: ivermectin, fenbendazole, and MMS (chlorine dioxide). Another possibility for whole system is homeopathy, which is subtle and gentle yet penetrating frequency medicine.
 
@United Gnosis, I'm very sorry to hear about your condition and hope we can contribute to a way of healing or at least improvement.

You've already received some great advice.
Apart from your diet may I ask if you took the vax?
Was there anything else happening in your life at the onset of your physical problems? An incident which triggered inner turmoil?

I also like AbbyQue's idea of including parasites as a possible trigger for your condition even if your doctors have already ruled it out.
Did you try a cycle of ivermectin already?
Allopathic doctors usually only act and are knowledgeable in their specific field so a more holistic approach might be of help.

Prayers, meditation and EE were already mentioned here.
Sending you strength and please keep in touch.
 
You are involved with allopathic medicine now, so not sure how to advise interacting with other approaches. However more and more info surfacing this last year that parasites are at the root of much, including problems with nerve sheath. Evidence is also trickling out from established cancer research that parasites are at root of cancer. So I'm thinking this line of exploration is worth looking at. I know of three useful antiparasitics: ivermectin, fenbendazole, and MMS (chlorine dioxide). Another possibility for whole system is homeopathy, which is subtle and gentle yet penetrating frequency medicine.

Just a word of caution, MMS is a dangerous poison that no one should consider taking.

Q: (L) Okay, I canceled our trip to Amsterdam today. Was that the optimal reaction to the revelation that they are going to suddenly have this Jim Humble there who's clearly in my opinion a snake oil salesman?

A: Yes.

Q: (L) Okay. My take on the whole thing was that his presence first of all was offensive. But what carried even more weight with me was the fact that they didn't want to invite Richard Dolan, and we let them know that he was interested in being there also. They said there were no time slots, so they basically refused to invite him. Then at the last minute, they put this Jim Humble in there. For me, it was the clearest statement that they had an agenda.

(Ark) Of course, they had an agenda to trap you.

(L) Was that it? Was there some kind of agenda?

A: Maybe not entirely conscious on their part, but, yes.

Q: (Burma Jones) An agenda that the Nexus organizers didn't know about, but that Humble's handlers imposed.

(L) Or somebody.

(Rabelais) Who are Jim Humble's handlers?

A: This sort of thing works through several levels of deniability. Therefore, few so called cointelpro agents realize that they have made a pact with the "devil".

Q: (Perceval) Was their motivation for inviting him financial?

A: Yes.

Q: (Perceval) They figured they could sell a lot of his stuff.

(Ailén) It still sounds fishy because of this creation of his religion. Where'd he get that idea from?

A: Remember why you discontinued your subscription to the magazine?

Q: (L) Yeah, because it had become nothing but what I would consider to be cointelpro. It was like the whole character of it changed. I cancelled my subscription back when we lived in Florida, and that was eight or nine years ago. And I wasn't interested in anything they were doing since. So you asked something about the religion thing?

(Ailén) Yeah, where did that idea come from?

A: Humble is "handled" at a different level. You could say that he is more in the league with Vincent Bridges and his ilk.

Q: (L) Well, you said that Vinnie was like a "hot popper", and pathological. Does that apply to Jim Humble?

A: Yes.

Q: (L) So, that means that he is some type of psychopath?

A: Yes.

Q: (Rabelais) Is there any medical benefit to taking MMS?

A: None. It is dangerous in the extreme.

Q: (Rabelais) Is there some reason this MMS is so popular in terms of controlling people, like with monoatomic gold, or does it just destroy their physiology?

A: Simple destruction and induced illness ultimately.

Q: (Ark) Is there any danger that if we publish this, we will have a multi-million dollar lawsuit from Humble?

A: Who is he going to sue? Sixth density?



 
Bummer UG – I hope you keep your spirits up even in the face of the declines you describe. The more you research, the more likely you will find reason for optimism/hope. That is my experience with similar circumstances to what you describe.

About 2+ years ago I had Covid ver D and promptly lost all sense of smell due to nerve damage – and still recovering that. The Covid was no big deal but the strangest cold I have ever had. After Covid I slowly began experiencing neurological issues involving gait, balance, and even speech. I have found a number of functional/integrative Docs that think Covid can leave one in a condition of susceptibility to health chronic conditions that are associated with one’s weakest links (whatever they may be). This has led me down a long road of investigation/research and consultations that I will try to give you the benefit of.

One thing that amazed me was the large amount of serious neurological conditions that are actually due to various bacteria (mycoplasmas, Chlamydia Pn, lyme, etc) and their ability to change form and inhabit various tissues with varying oxygen gradients. Many of these conditions have catch-all names like MS (and probably NMO). Early work by Rosenow confirmed that many of these originate from focal infections in the mouth (bone, cavitations, periodontal, teeth, root canals, tonsils, etc). This early work has been suppressed/ignored but is being revived by functional Docs like Levy.

A very good summary of Rosenow et al early work at isolating/identifying these bacterial forms is:

What's Eating You: Bacteria With Taste: Rosenow et al. on Microbial Infection, Variation, Localization (The Medical Guide Of The Future) (Volume 1) The Medical Guide Of The Future

In my own case, recent blood tests showed:
  • Chlamydia IgG – positive (strong)
  • Mycoplasma Pn IgG – positive
  • Lyme IgG Blot – negative
There is a new test that is apparently much preferred by many Docs. VibrantWellness is the provider of the Tick-borne panel that does a massive number of co-infections:

https://www.vibrant-wellness.com/tests/tickborne-disease/#1527504422796-ce510636-2662

This test (new technology) is expensive and I have not done it, but I think it might be useful to have an accurate picture of infection likelihoods including viral. See the above link for all organisms that are tested for (including IgG, IgM, and PCR).

Another possible route is to do a remote consultation with Health Revival Partners Dr Tom Lewis:

Mission | HRP

An example set of blood tests and consult is here:

6. CDT Panel +Thyroid + Iron + Infectious + Consult | HRP

The blood panels are configured by Dr Lewis to give a comprehensive assessment of chronic conditions in various areas like brain, heart, diabetes, etc. I have done this test/consult with Dr Lewis and can recommend it. He is also very knowledgeable of the eyes and will want to see your OCT retinal scan.

Dr Lewis is a PhD - not MD. Dr Lewis and partners prefer to work with folks that do their research and are willing to take responsibility for their decisions. Tom hosts a weekly zoom meeting with many good guests with cutting edge research. Many of these are posted on YT here:

https://www.youtube.com/@chronicdiseaseassociation1034


Another option is to look into peptides – this field is really growing strong with many options for treating the neurological. You will need to find a Doc that is fluent in the peptide world. A good one is Dr Holtorf:

Homepage | Dr. Kent Holtorf

He recovered from almost complete debilitation via peptides, and has become an expert in the field. Hear his story here in an interview with Dr Lewis.


Another thing you may find helpful is methylene blue. Liposomal MB is available as well as other pharma-grade preps.

I hope all this gives you some ideas and more material to consider.
 
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