Guardians of Our Parents

I've recently had to deal with helping my mom who's not herself anymore. What I mean is that she has developed a mental condition which has affected her ability to function as a normal cognitive person. The main thing seems to be her ability to understand things and retrieve memory - kind of slower and more dependent on people to give her logical answers. I don't have a classification for it, but it was caused by using several medications for depression and pain relief over some years which I have big pharma to thank for. Now I'm in a situation where it's my responsibility to care for her needs and living requirements and it's something I would never have expected to happen.

This whole thing has taken an emotional toll on me. Whenever I talk to her I'm always thinking about who she was before this happened so there's some possibility of communicating to her on a level she remembers instead of talking to her like a patient of some kind. I know there's no reversal of her cognitive impairment, but I think with the proper stimulation and better food choices such as coconut oil, krill oil, turmeric, and B vitamins she may be able to hold off any further damage in future. She's off from taking medications, but I can't always watch if she's taking advil or tylenol and such.

Have any other members been in this kind of dilemma? I feel as if there's no one else to relate to all of this and at the least could use other people's experiences or thoughts on the matter. Whatever it takes I want her well, and it's been a hard struggle finding decent help from any 'professionals', whose advise is disappointing and expectantly mainstream.
 
I'm sorry this happened to your mother, Celtic Warrior. I fear that this will be the case with many children with older parents as cognitive disorders (Alzheimer's dementia and the like) are becoming more commonplace and striking people at younger and younger ages. And as you said, all thanks to big Pharma and big Agra as well.

You say your mom's condition was caused by long term use of medications? Have you looking into any detoxification protocols such as Sherry Rogers's book Detoxify or Die? It sounds like a serious liver detox is in order. Is your mom's condition such that she is able to make decisions regarding following a certain protocol (with guidance, of course)?
 
Hi Celtic Warrior,
I am sorry to hear about your mom. Do you think she might want to try Eiriu-Eolas?

Have you read Mark Hyman's Ultra Mind Solution or Ultra Simple Diet? It's not paleo, but it might give your mom a mental boost by eliminating food allergies that are inflaming her "second brain". There is a thread here on the forum about his Ultra Simple Diet. EE and the diet should be a good starting point.
 
I am sorry to hear what has happened with your mother. I also think that diet, detox, and EE are great start to improve her psych and to help her stay focus. I remember reading that every time we do something new or challenging can stimulate our brains immensely, so it might help if you can become an example and show her doing something that she has never done before. :hug2:
 
Hi CelticWarrior, I think your Mother is deeply blessed with someone who has taken to heart, her well being and health. Diet does play a large part in healing and your suggests sound like you're on the right track in helping her immune system recover from the medications.

I agree with Odyssey, detoxification protocols are in order to help release toxins and any metals in her system, especially in the brain and liver. A mild detox in the beginning, along with quality food choices will go a long way in stabilizing her mental health. A more in-dept detox can proceed when you feel she can handle it.

I've been fortunate, through the years, to have avoided medications but after an accident, the doctor place me on several for pain and swelling. In the discovery of a pinched nerve, more were added for pain relief. My whole personality changed. I went from vibrant and energetic to mindlessly walking from one room to the next, unable to put words together in a simple sentence, without pausing several times, to find the right words to express myself. I live alone but when my family visited, they were horrified. I would acknownledge them, then stare into empty space, not even aware they were still there. I think, part of the problem was the constant headache that dulled the whole body.

When my family checked the medications, they found - the three percribed for pain were also labled anti-depressants and a call was placed into the doctor. I was taken off one and the other two were reduced in dozage. It took another three weeks before I could remember my name (without having to search in mid-air for it.) A few weeks later, I tossed all the medication in the toilet and went "cold turkey." I almost lost my mind! I do not advise that for anyone!!! It's your worse nightmare, physically and mentally!

Quote:
I know there's no reversal of her cognitive impairment.......

There's no real way of knowing that, until changes to diet are instrumented and measures taken to help detox. It may be days or weeks before you're able to see changes in her, mentally. Usually, the physical changes are seen first, especially facial responces. It takes the brain longer to recover from the brain fog and damage done from the medications. The medications could also be causing a secondary problem with retaining water/fluid, long after they're stopped. Might be the reason - why she might reach for advil or tylenol? In my case, putting celery in my diet, in soup or raw, removes fluid retension.

Also, don't get discouraged, if your Mom relaspses into a mental fog for a day or two, after starting the diet and any detox. It may happen, on and off, as the brain is healing. As time progresses, the results will be remarkable.
 
Sorry to hear about this situation, CelticWarrior. I agree that diet, detox, and EE can be very helpful. Plus engaging the mind and having good social connections.

And sometimes, it's not even long term use of Big Pharma drugs that will have huge negative affects. My father took one or two doses of a drug for enlarged prostate and it immediately had a huge negative affect, including difficulty breathing. Even though, the drug was stopped immediately (I was just about completing gathering alternative treatment info and getting the supplements and supplies), he was never the same again. He seemed to become less engaged over the next few months, and he also started walking like he was suddenly 10 years or more older shortly after taking the drug. Just a few years earlier he used to go up and down stairs better than my mother (15 years younger than him) and used to do all the shopping, carrying back many bags while my mother still worked, and he was already retired for several years.


Added: Just saw your post angelburst29.
 
SeekinTruth said:
And sometimes, it's not even long term use of Big Pharma drugs that will have huge negative affects. My father took one or two doses of a drug for enlarged prostate and it immediately had a huge negative affect, including difficulty breathing. Even though, the drug was stopped immediately (I was just about completing gathering alternative treatment info and getting the supplements and supplies), he was never the same again. He seemed to become less engaged over the next few months, and he also started walking like he was suddenly 10 years or more older shortly after taking the drug.

Hi SeekinTruth, could your Father have suffered a mini-stroke ...... brought on by the Pharma Drug as a catalysis?
 
angelburst29 said:
Hi SeekinTruth, could your Father have suffered a mini-stroke ...... brought on by the Pharma Drug as a catalysis?

Not sure, but it's certainly possible. If I remember correctly, I got on the internet that night and read a bunch of negative experiences about that drug, and the difficulty breathing and some of the others seemed very common. This was all at a time when we were getting ready to leave the U.S. in around a month. He did have a minor stroke in March (7th or 8th) 2011. But he was showing signs of something like dementia for a while at that time and not too "with it" most of the time.

He wouldn't sleep at nights and would wander around the house, usually eating several bananas and apples. A little after the minor stroke, I was reading on the site gutsense, I think, an article by the author of Fiber Menace and in one section he made the comment that both apples and bananas had a strong association with strokes. He recovered from the stroke without much new symptoms like paralysis on one side or speech impairment. But he died around a two month later. His last days were grueling and he seemed unable to breathe.

On another occasion, around four and a half years earlier, he seemed to have had a stroke, his speech was slurred, etc. My brother had noticed first. Then, we discovered that he had eaten moldy bread (this is very thin sheets of bread that when bought is still warm, but was put in plastic, and so had become moldy in a short time with the moisture trapped in). So I gave him large doses of vitamin C and niacin and some other supplements. He had recovered by the next morning.

We did bring him to the hospital, as I wanted to just be sure he hadn't had a stroke or was about to have one. We just happened to bring him to one of the expensive hospitals that runs the same type of scams as in the U.S. and the West. They claimed he was "having a stroke" as we brought him in, and said they have to keep him there. But by this time his condition had totally normalized, so we weren't buying it. After a long run around and keeping him in the hospital (intensive care) for several days, they admitted that he did not have a stroke - we obtained the CT scans (I believe they were) - and released him.
 
So Sorry to hear what happened with your Father, SeekinTruth. Very much like the situation CelticWarrior is experiencing in trying to help her Mother, the best she can within her means. It can be heart-wrenching to witness a Parent in distress due to health problems. Parent's are usually our fortitude of strength and knowledge, and when we detect a weakness, especially in health, we tend to question our own strength and ability to cope with the situation.

In my own case, my Family was horrified (in a real sense) by the complete reversal in behavior and mental stability that manifested in a short period of time. Yet, I was in "my own little world" just trying to cope with something that felt very foreign and out of place, that produced tunnel vision - to that which was manifesting on the outside. They were suddenly faced with the realization, of how they would cope or react, if I didn't pull through the circumstances. I'm very fortunate that they took the initiative to check out the medications and proceeded from there. It's by their reaction and actions they took - that helped me towards recovery. In hindsight, even though the accident/injury left certain limitations and physical abnormalities, the medications percribed and administered were the most damaging effect of the whole experience.

To a strong degree, we (especially those involved with this forum) are very fortunate to be exposed to the various topics discussed here, especially diet and health and how to cope mentally with situations we find ourselves facing. We "are" in a better position to cope and work through obstacles, not only for ourselves but for the benefit of those around us.
 
Yeah, I hear ya, angelburst29. It's a minefield navigating the "health" care system. In a sane world, most of the pharmaceutical drugs would NOT be on the market. The only positive results I've seen in my family, friends, and acquaintances is through diet, supplementation (when needed) and alternative approaches. Pretty much none of the drugs do what they're supposed to - well, unless you come to believe their supposed to keep you on them for the rest of your life and increase the number of drugs as you develop more problems from taking them, as I have - that's pretty close to the multi-billion dollar reality.
 
As with everything, it can be the case that medications are not always bad. I'm on several heavy duty medications for the consequences of Ehlers Danlos Syndrome. No amount of changes to diet and lifestyle can control the unbelievable pain of a collapsing spine. Diet and lifestyle changes of course can, and do, help to keep me as healthy as possible but I simply couldn't function without the assistance of chemicals. At the moment they are helping hold off the day when I'll have to rely on a wheelchair on a permanent basis, rather than just occasionally as at present. So, in some circumstances they can be a force for good. IMHO.
 
CelticWarrior said:
I've recently had to deal with helping my mom who's not herself anymore. What I mean is that she has developed a mental condition which has affected her ability to function as a normal cognitive person. The main thing seems to be her ability to understand things and retrieve memory - kind of slower and more dependent on people to give her logical answers. I don't have a classification for it, but it was caused by using several medications for depression and pain relief over some years which I have big pharma to thank for. Now I'm in a situation where it's my responsibility to care for her needs and living requirements and it's something I would never have expected to happen.

This whole thing has taken an emotional toll on me. Whenever I talk to her I'm always thinking about who she was before this happened so there's some possibility of communicating to her on a level she remembers instead of talking to her like a patient of some kind. I know there's no reversal of her cognitive impairment, but I think with the proper stimulation and better food choices such as coconut oil, krill oil, turmeric, and B vitamins she may be able to hold off any further damage in future. She's off from taking medications, but I can't always watch if she's taking advil or tylenol and such.

Have any other members been in this kind of dilemma? I feel as if there's no one else to relate to all of this and at the least could use other people's experiences or thoughts on the matter. Whatever it takes I want her well, and it's been a hard struggle finding decent help from any 'professionals', whose advise is disappointing and expectantly mainstream.

Hi CelticWarrior. I started a thread a while back "Caring for my elderly parents". I have an idea of what you must be going through.

My Mom has dementia and my Dad has multiple health problems. I first noticed my Mom`s memory slipping when she would repeat herself in a conversation of just a couple minutes. Then she got lost while driving for about 5 hrs and that`s what really threw up the red flags.

My Dad was over medicating with strong pain meds from 3 different doctors. He was relying on my Mom to take care of him. It was all together a very bad situation. They lived in their home of 60 yrs. My Dad was adamant that he was going to stay in his home and he would die there.

I was able to convince my Dad to let me be their power of attorney. I could then pay their bills (electric was set to be turned off) and help them with medical decisions.

I scheduled them both to be evaluated by a neurologist and have the proper tests done for my Mother to see how advanced her dementia was. The tests came back that hers was advanced and my Dad`s was mild.

Needless to say, my Mom couldn`t care for my Dad. They were not safe living in their home any more.( I live 4 hrs away)

I had a very honest conversation with each of my parents. To my Dad, I made it about my Mom and her dementia. To my Mom, I made it about my Dad overdosing on his meds.

To make a long story short(!) I was able to move them together to a 24hr care nursing facility. It really was what they both needed. Bottom line was they both needed to be in a safe environment.

My son and I visited my parents this past thanksgiving day. They`ve been in the nursing facility for a year and a half now. They are receiving excellent care. My Mom`s dementia is a lot worse, but she`s still "happy go lucky". My Dad was alert and doing well considering all his health issues. He gets upset when my mom doesn`t remember who he is, other times she thinks her deceased mother and siblings are close by. I just let her think that and try to convince my dad to do the same, kind of like playing a game so she doesn`t have to experience the pain each time when he tells her that they died years ago.

It saddens me that I can no longer have a conversation with my Mom, and say hey Mom do you remember when.....

To back up just a little, I did try the coconut oil and capsules with my Mom, but I think she was already in advanced stages. I do know of people that used it and had success. My understanding is that coconut oil produces ketones. Along with bone broth as Lisa suggested, could be very helpful if your Mom is open to it.

I wanted to do the right thing by my parents. I couldn`t take care of them at home. They both needed 24hr care.

I hope this was in some way helpful to you CelticWarrior. Like I said, I have somewhat of an idea what you are going through. It takes a lot of patience and perseverance.

Best regards, Nancy
 
My son and I visited my parents this past thanksgiving day. They`ve been in the nursing facility for a year and a half now. They are receiving excellent care. My Mom`s dementia is a lot worse, but she`s still "happy go lucky". My Dad was alert and doing well considering all his health issues. He gets upset when my mom doesn`t remember who he is, other times she thinks her deceased mother and siblings are close by. I just let her think that and try to convince my dad to do the same, kind of like playing a game so she doesn`t have to experience the pain each time when he tells her that they died years ago.

In reading the above, a memory surfaced that has been buried for about 20 years.

We had experienced a heavy snow fall and the school's and many business's were closed. I had called off from work, to be home with my Son's, then 5 and 9 yrs.old. After breakfast, they decided to play with their leggo's on a table next to the livingroom picture window. I went out to clear the snow from the car and shovel the driveway up to the main road (about 2 car lengths). My Son's watched from the window and in about 20 minutes, I was back in the house. In changing from the wet clothes, noticed a small pebble had fallen on the floor when I slipped off my boots. A small scratch was bleeding above the ankle area on the left foot, so decided to take a quick shower and apply triple antibiotic creme to the cut with a bandaid. Never gave it another thought.

That night, suddenly awoke to a sensation of something hot traveling up my spine with an internal popping sound going off in my head. I sat up and felt awful sick. When I went to check on my Son's who were asleep in their bedrooms, a feeling came over me that 'something was really wrong." I called my Ex- Husband and asked if he could come and watch our Son's, I needed to get to a hospital. Within a short time, he was at the door. He woke up the boys, got them dressed and we went to the emergency room.

In the emergency room, the experience was surreal. I couldn't give the Doctor's a specific reason why I was there - other than - I felt deathly sick. Upon examination, the small cut on the left leg had turned into a big black spot, larger than a quarter. One of the doctor's with a Russian accent litterly yelled at me - for taking so long to get medical treatment - yet it was less than 24 hrs "before", that I had gotten the cut from the pebble in the boot. Neither of the Doctor's would believe me! I was told, "I had gangrene, it was spreading and they would try to save my leg." (At the time, I didn't know what gangrene ... was? Never even heard of it.) Next thing I remember, two surgeons were introducing themselves and giving me a prognosis and what to expect in a worse case scenario. None of it felt real. Unable to schedule time in an operating room, they set up a cloth tent in front of me and administered something extra in the IV. They took a big chunk out above the ankle and scraped the bone, hoping to save the leg. In the end, they did save the leg. The whole incident has always felt like a "flash" was inserted into my life, that didn't fit in with normal everyday progression of my life? A freak incident without a natural cause.

On the 9th day in the hospital, my Father visited me. Problem is - my father died when I was 11 and now I was almost 40. Hospital staff had just collected the breakfast trays and you could hear them in the hall. As I layed there, my mind was pre-occupied with my son's, for I missed them terribly. I sensed someone came into the room and when I looked up, my Father was standing at the foot of the bed. It didn't startle me, for it felt completely natural. We made eye contact and while I searched for words to say something, my chest area took on a deep feeling of warmth. Mentally, I heard the words, "not yet" and when I looked up again, my Father was gone. There was a certain feeling of hurt, for I didn't get to tell him that I still loved him very much, yet, the warm penetrating feeling lingered on for several more days. Even now, I can envision it and it still feels - very real and natural. There was a bending of realities.

The following day, with the hope the Doctor would release me to go home, he opted for another day. I just wanted to go home - right then and there. The food looked like lab specimens and you could never get more than two hours sleep at a time, for they were always checking temp or blood pressure or doing blood work or getting you out of bed for one thing or another, even during the night. The women who shared the room with me had been administered Last Rights and the nurse's where always in and out, checking on her. That evening, after visiting hours and they began dimming the lights, a nurse came in, completely reorganized the sheets and blankets on my bed. Without saying a word or even making eye contact, she went about her business and then went to the next bed. There was something about the nurse that seemed different, in some way, yet nothing seemed out of the ordinary, other than, she wore a nurse's white cap. When she left the room, she closed the door. I felt so comfortable, I dozed off into a deep sleep. I awoke just as they were bringing in the breakfast tray. I couldn't believe, they let me sleep through the whole night. I inquired about the nurse that had come in to get us settled for the night but was told - that my description didn't match any of the nurses on night shift, nor was it mandatory for them to wear the nurse's cap. But good news, Doctor had signed the Release Form and they were scheduling a visiting nurse to change dressings. As the nurse and my Ex-husband were taking me to the elevator in a wheelchair, Code Blue went over the PA system. Staff and equipment were being rolled into the room I had occupied. I can only surmise, the woman in the bed next to me, passed away.

Nancy2feathers, what your mother is experiencing ( she thinks her deceased mother and siblings are close by ) may seem very real to her. With the "thinning of the veil' and the mental effects that dementia (living in two realities) manifests, it may be a possibility? So much of our world has yet to be discovered. We have a better idea of densities now, then in times passed, including Laura's and Ark's work in the field. Also, I would imagine, medications may play a large part in "spitting of realities." So, it's hard to narrow down an exact cause. In the example I gave above, medication and ill health may have played a major role in what I had experienced. But the timing of certain events around the experiences - makes me wonder if something has been inserted or if it's a natural flow of events through cause and effect? I have had several odd experiences, before and after this gangrene event where no medication was involved. Yet, they all seem very real and physical. Maybe, on a mental level, they are made to feel real?

Elisabeth Kubler-Ross did some interesting studies on dying and death. She also ventured into checking into certain diseases and their effects that mimic near death visions. I remember reading something on Dementia and Coma victims in some of her studies.

Both of your Parent's seem to have adjusted well to the nursing facility and are getting around the clock quality care which is beneficial. Reducing the stress level is a definite plus.

Mod's note: Edited to fix the quotation boxes
 
It seems that way, Odyssey, our parents are becoming more susceptible to the last one hundred years of agricultural based diets and the pharmaceutical industry gaining momentum with each passing decade. But as Angelburst29 mentioned we are in a fortunate position to share our knowledge and challenge the state of our modern healthcare system. I for one am not ready to let it win what with alternative sources available.

Odyssey said:
Is your mom's condition such that she is able to make decisions regarding following a certain protocol (with guidance, of course)?

I'd say yes. There's a good possibility of her ability to grasp a detoxification protocol while following direction and under careful supervision. I'll look into the Detoxify or Die and Ultra Simple Diet texts to start. Along with diet and detox, it could be a huge help to introduce EE breathing if she is willing, as well as engaging in mental stimulation (ie learning something new or different) and good social connections.

angelburst29 said:
I agree with Odyssey, detoxification protocols are in order to help release toxins and any metals in her system, especially in the brain and liver. A mild detox in the beginning, along with quality food choices will go a long way in stabilizing her mental health. A more in-dept detox can proceed when you feel she can handle it.

Quote:
I know there's no reversal of her cognitive impairment.......

There's no real way of knowing that, until changes to diet are instrumented and measures taken to help detox. It may be days or weeks before you're able to see changes in her, mentally. Usually, the physical changes are seen first, especially facial responces. It takes the brain longer to recover from the brain fog and damage done from the medications. The medications could also be causing a secondary problem with retaining water/fluid, long after they're stopped. Might be the reason - why she might reach for advil or tylenol? In my case, putting celery in my diet, in soup or raw, removes fluid retension.

Also, don't get discouraged, if your Mom relaspses into a mental fog for a day or two, after starting the diet and any detox. It may happen, on and off, as the brain is healing. As time progresses, the results will be remarkable.

Hopefully that is the case. There's no actual way of telling how long the process could take, what affects it will have on these specific circumstances, but you're right there Angelburst29 because only time will tell in conjunction with hard effort.

Nancy2feathers said:
Hi CelticWarrior. I started a thread a while back "Caring for my elderly parents". I have an idea of what you must be going through.

I was able to move them together to a 24hr care nursing facility. It really was what they both needed. Bottom line was they both needed to be in a safe environment.

I wanted to do the right thing by my parents. I couldn't take care of them at home. They both needed 24hr care.

It saddens me that I can no longer have a conversation with my Mom, and say hey Mom do you remember when.....

To back up just a little, I did try the coconut oil and capsules with my Mom, but I think she was already in advanced stages. I do know of people that used it and had success. My understanding is that coconut oil produces ketones. Along with bone broth as Lisa suggested, could be very helpful if your Mom is open to it.

I hope this was in some way helpful to you CelticWarrior. Like I said, I have somewhat of an idea what you are going through. It takes a lot of patience and perseverance.

Hi Nancy, I agree it does take a lot of patience and perseverance. I am happy you were able to get your folks into an all day care centre, and feel what you have gone through is very understandable. At this point, I'm going to need to place her into a nursing hospital as she cannot be left alone since there have been incidents of wandering away and getting lost. She is almost 60, and I'm usually out working, so this will help facilitate the transition based on the fact that it's too difficult for me to keep her at home. I'm glad there is a great selection of choices around my area where I could have her live close by, then visiting will be more often as I want. Like you, I live further away about an hour or so which isn't the best scenario to see family whenever you want other than calling them up....
The hardest thing which you've described is having an honest conversation and fully convincing my mom that she will need the care.

Thank you folks, your info and support has been invaluable.
 
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