Help from Psyche?

[Meager1]

This is Pam, she is in her mid thirties, she developed this "brain disorder" without any prior symptoms.

She has been to many M.D`s and no one has been able to diagnose this, or help her in any real way. She has tried just about everything the M.D`s recommended yet she gets progressively worst.

I am including the video she made and put on face book in the hope that someone will recognize her symptoms and point her in the right direction.

I hope I am not over stepping by asking this for her, here, but she is really suffering so I`m hoping you might have some suggestions?
She is a family friend, my brother dated her a few years back.

My first thought was mercury or heavy metal poisoning, but they must have checked for that?

http://www.youtube.com/user/SickBrainGirl?feature=mhee#p/a/u/2/bDG7iwUlWLQ

 

[Infiniteness]

Is she gluten and dairy free? I know from experience that gluten can quite literally fry your brain! Then again I think you might not be applying external consideration, violating free will? I do wish her will, I know how scary it is to have debilitating neurological symptoms.

 

[Gaby]

Hello Meager1,

I haven't watched the video yet, but just wanted to note that when it comes to obscure diseases, so called idiopathic diseases, you should suspect autoimmune problems that should be addressed with diet. Mercury toxicity also has to be suspected in any disease difficult to treat, but changing the diet is the first most important step. Gluten, casein and cross reactions with other foods like coffee and all grains including buckwheat can become powerful neurotoxins for the brain.

 

[Laura]

This woman should read "Primal Body, Primal Mind" since a great deal of the emphasis is on how the mind is affected by food, as well as the body.

 

[Meager1]

Ok thanks. I have related these suggestions to her via her face book page, but I think she is having some difficulty understanding the gist of it. I doubt that she can read and comprehend more then a paragraph at a time. She though the diet reference was to changing over to all "fresh" fruits and vegetables etc..so I think I will go to her house and sit down with her, speak slowly and try to get across that she has to eliminate everything but fatty meats and a few veggies etc. She does still have metal fillings, so that might be contributing and her last job was in a "party store" that sold balloons and various paper items. What concerns me there, is that most of that stuff comes from China, so who knows what she may have been exposed to from that!

 

[herondancer]

Can you write out the diet basics for her in very simple terms? If she's on her own, she may be defaulting to whatever is the least tiring to prepare, which is probably junk food. Does she have any support to help her function from day to day who could help her stay with the diet, or by making a week's worth of meals in advance? They should read PBPM. Some of what she described sounds almost like MS, where hot or cold can bring on symptoms.

 

[Meager1]

She lives alone, which makes it even more difficult for her.
She does have friends who have volunteered to shop for her, so that part is taken care of. She was tested for MS and just about everything else, and nothing was found which is why it`s such a mystery and no one has been able to offer a cure, or even something that helps with her symptoms. I think she was a vegetarian, one of her friends offered to go and help her with "Gluten free products" etc, and I think the friend was a little angry that I suggested no grains at all.

Yes, I will make a list of what she can eat and make her understand why and how the diet works and I`ll bring some printed info with me to leave with her. I am going to suggest too, that she start taking the supplements Vitamin C, Magnesium and Iodine (from sea salt or kelp) at the very least.

I wanted to suggest the infrared sauna too, but I don`t know if she is strong enough for that.

 

[herondancer]

Good to hear the MS test was negative. The symptoms sounded similar from the people I've known with MS, so I thought I'd throw that out there. Watching the vid was very sad.

The FIR sauna would be great for her if she can do the diet at the same time. She would need to start very slowly, just running it at body temperature, so she gets the benefits of the infrared without stressing her system with too much heat. Maybe for only 10 minutes a day, and work up gradually, but Psyche is better qualified to say. Is she willing to stick with things? Or is she looking for a medical magic bullet? It will take a little time for the effects of being gluten, dairy, sugar, etc free. to be apparent. Sounds like the friend needs to read The Vegetarian Myth.

 

[Possibility of Being]

Hi Meager,

I watched her videos and it's just heartbreaking. :( I truly admire her determination to reach doctors who could help if such exist. Pam is in my thoughts and prayers.

Hopefully her determination will help her to understand and apply with the same strength the need to go free of gluten, dairy, sugar, garbage. I think you should try to get her slowly out of coffee. Caffeine is detrimental to brain chemistry and Pam mentioned drinking coffee in her video. She needs to do it slowly, she doesn't need more headaches and suffering than she's already experiencing.

Her friends should read carefully all labels against any traces of gluten, sugar, aspartam, MSG, etc. They should know that even rice is dangerous in her condition, etc. You know what I mean. Perhaps make a selection of articles, print them out and give them to read.

She mentions four medicines that should never be taken together. Do you happen to know what they were? Do you know what her worsening condition was before she began taking those medicines? I am not a doctor, so it won't say me much, but I think these can be important information that could hopefully help us all to better understand what can be going on with her.

Big hugs to you both.

ADDED: How about teaching her pipe breathing (and POTS if she is open to it)?

Edit: MSM --> MSG

 

[pete02]

Her friends should read carefully all labels against any traces of gluten, sugar, aspartam, MSM, etc. They should know that even rice is dangerous in her condition, etc. You know what I mean. Perhaps make a selection of articles, print them out and give them to read.

This brought to mind a friend that my brother knew who ended up in the hospital catatonic once and the doctors never figured out what was wrong with him. He was completely unresponsive to anyone or anything. After a few days in the hospital he finally snapped out of it (lucky for him) but they never were able to tell him why it happened to begin with. My brother and I were talking about it later and he happened to mention that his diet consisted of mainly soda and chewing gum. Aspartame in both! That stuff is devastating and although I'm not sure if its Pam's problem it certainly can't be helping her. Do check everything she is eating if you can. It will be a great help I'm sure.

 

[Nienna]

I'm also wondering if getting her on ALA, NAC, vit E will help her to detox?

The video is heartbreaking!

Has she had many vaccinations? The toxicity of those, along with a bad diet, could really wreck havoc on some people. Especially if they are eating a lot of aspartame, msg, etc.

 

[Meager1]

She mentions four medicines that should never be taken together. Do you happen to know what they were? Do you know what her worsening condition was before she began taking those medicines?

No, I don`t know. I forgot to even ask about that!

She has been off of them for years now though, from what I understand.

I have given her a list of foods she can eat and explained why, suggested books, and have forwarded a few video`s to her face book page that contain a lot of the info she needs.

Hopefully, she is paying attention and will start changing her diet immediately,and take the supplements suggested in the video`s etc. I`ll keep checking in on her and will let everyone know if diet was the "magic bullet" that helps to turn this around for her.

It`s really scary to think that (if) this is primarily a diet issue, that any of us could have ended up like her!

Makes me think of Jason too and what he went through, and how there is still such a major shove towards carbs, grains and junk food out there, and how basically ignorant of all this the general population really is! It`s really, really scary when you see it up close like this and realise that it could all be diet related.