Connective Tissue Disorders/Ehler Danlos, the ECM and Chronic Issues - MCAS, CIRS, POTS, CFS, IBS, Dystonias, Pain, Proprioceptive Disorders, ETC.!

[Fluffy]

There is testimony of a woman named Elizabeth from Sweden who was diagnosed with Ehler-Danlos, POTS, and fibromyalgia. She was living in incredible debilitating fatigue and pain, but refused to let the diagnosis become her fate, and went looking for answers. She found that one of Irene Lyon's nervous system courses, based on a blend of Somatic Experiencing and Feldenkrais, has helped clear up all of her symptoms. Quite a remarkable story. There are a few other videos where she shares updates. The relief has not been transient, either - she's still feeling great even years later!

This is good to know, I think. In one interview, Irene asks Elizabeth if she thinks her genetics have changed. I liked this question, because the term 'genetic disorder' or 'hereditary syndrome' has the flavour of 'your diagnosis is your fate' to it. I think I subconsciously applied this to myself - I have a genetic issue, and given the severity of my symptoms, it was easy to get stuck in my thinking about it when in so much pain and discomfort. It was disheartening to say the least. Elizabeth's story gave me a good example to follow and opened up the door to healing again - thinking in unlimited terms. Regulating the nervous system probably didn't change her genetic code, just the way in which the code is expressed. A good reminder that DNA isn't a fixed destiny, it is a language that includes a huge range of potentials and possibilities. It all depends what letters and words we choose to use for the story we tell ourselves.

So trying to figure it out - given that 1) the nervous system is the basic platform for our lived experience, based to some extent on our gene code, 2) EDS is also genetic, 3) trauma effects the way our genes express, 4) so then trauma effects expression of EDS and other syndromes, 5) we inherit trauma from our ancestors, from past-lives and from this-life, and 6) nervous system therapies can release ancestral trauma, as well as past-life trauma and this-life trauma, 7) leading to reduced load on the nervous system, and reduced expression of debilitating syndrome effects. Anyways, that's my attempt to make sense of Elizabeth's story of finding her way into a healthy new experience of life.

Very interesting what she says about plants dying. My indoor ones I’ve had for many years are okay, I suppose they’re used to me, though the new ones I purchased this year, seeds and seedlings that I’ve tried to grow have either died, aren’t flourishing, or seem to be sick even in the same garden that plants I’ve had for years are thriving.

I did make the connection about my stress and physical health issues, so now if I’m doing that to plants I can only imagine how I’m affecting my whole environment.

 

[Chu]

There is testimony of a woman named Elizabeth from Sweden who was diagnosed with Ehler-Danlos, POTS, and fibromyalgia. She was living in incredible debilitating fatigue and pain, but refused to let the diagnosis become her fate, and went looking for answers. She found that one of Irene Lyon's nervous system courses, based on a blend of Somatic Experiencing and Feldenkrais, has helped clear up all of her symptoms. Quite a remarkable story. There are a few other videos where she shares updates. The relief has not been transient, either - she's still feeling great even years later!

This is good to know, I think. In one interview, Irene asks Elizabeth if she thinks her genetics have changed. I liked this question, because the term 'genetic disorder' or 'hereditary syndrome' has the flavour of 'your diagnosis is your fate' to it. I think I subconsciously applied this to myself - I have a genetic issue, and given the severity of my symptoms, it was easy to get stuck in my thinking about it when in so much pain and discomfort. It was disheartening to say the least. Elizabeth's story gave me a good example to follow and opened up the door to healing again - thinking in unlimited terms. Regulating the nervous system probably didn't change her genetic code, just the way in which the code is expressed. A good reminder that DNA isn't a fixed destiny, it is a language that includes a huge range of potentials and possibilities. It all depends what letters and words we choose to use for the story we tell ourselves.

So trying to figure it out - given that 1) the nervous system is the basic platform for our lived experience, based to some extent on our gene code, 2) EDS is also genetic, 3) trauma effects the way our genes express, 4) so then trauma effects expression of EDS and other syndromes, 5) we inherit trauma from our ancestors, from past-lives and from this-life, and 6) nervous system therapies can release ancestral trauma, as well as past-life trauma and this-life trauma, 7) leading to reduced load on the nervous system, and reduced expression of debilitating syndrome effects. Anyways, that's my attempt to make sense of Elizabeth's story of finding her way into a healthy new experience of life.

Beautifully expressed as usual, @iamthatis ! I think there is a lot of truth to it. Another way to think about it is that our genes are the "mold" we are born into (just like our zodiac sign, for example). But there is freedom and variability in terms of how they will get expressed. Each gene (and each sign, say) has its positives and negatives, and depending on how we conduct our lives and what we "tune into" via our genes, a lot can happen. It is also linked to the lessons we came here to learn. So, it's about discovery, working with what we each have, and making the best out of it. OSIT.

I watched the video quickly, and didn't catch what she was saying about Feldenkrais. I can't talk about it authoritatively, because I only had two classes on it in my life, but I think it can be extremely beneficial for working on the fascia, posture and pent-up emotions. I have benefited a lot from Holistic Gym, thanks to @France, and she is much better equipped to explain the differences between the two approaches. Anyway, that and Somatic work can be very healing, I think, on top of whatever you need to do to support, manage and even heal some of these usually called "untracktable" diseases. Not just at a physical, but also at am emotional level.

I hope this is not too off-topic!