Re: Exposing Online Predators & Cyberpaths
sandrabrownma said:
Yup, that's what she said at one time. The way she exaggerates, I'm thinking she used one of those electric chairs at Walmart?
_http://forums.obgyn.net/pcos/?page=PCOS.0007/0417
Addressing the Issue - more
From: nessworld@banet.net
Fri, 07 Jul 2000 16:21:49 -0400
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Reply: Monica: "Re: Addressing the Issue - more"
I also have to add a word about addressing the issue.
When I came down with CFIDS (Chronic Fatigue Immune Dysfunction Syndrome formerly "CFS) I too thought it was just "yuppie flu" and "fatigue". I thought I had M.S. I wasn't sleeping, hurting all over,
I was in a wheelchair, lost a lot of weight, severe headaches, metallic taste in my mouth....ect ect. I could not believe I had CFIDS - I didn't think it was that serious. I went from doctor to doctor all of who told me I was lazy, crazy, and not sick at all.
Finally, by chance, I ran into someone while
I was in my chair and my husband had me out for an airing. She was sitting near us and said "you know you look like a friend of mine. She has CFIDS." I asked more. She gave me some numbers. I got on line, made some phone calls, and FINALLY found a doctor in NYC (Can you believe in all of NYC only a handful believe in this illness?) I had some brain scans done. I had my old tests with me. Seems the 7 doctors before my new one had MISSED things and my brain scans were a mess. I had immune abnormalities normally dismissed by a lot of doctors.
When I hear these stories of doctors who blow off PCOS it all sounds so familiar. I have had PCOS since 1966 but this "ostrich syndrome" seems to be a trend among doctors <VBG>
If it hadn't been for that woman sitting near me I would still be in the dark. Or I would have gone nuts and committed suicide in despair. My last bad doctor had the committment papers for a rest home all ready for me.
I am still suffering with CFIDS but not in the dark. I am informed. I use every opportunity I can to talk to people about both CFIDS and PCOS. I recommend doctors. I am still very angry at the years of suffering but anger can be a great motivator.
Barbara Camwell Ness in NYC