Limited research has been conducted on conversion disorder, and a taboo still surrounds it. That needs to change, say Marleen Tibben, healthcare psychologist and manager of the HSK Expertise Centers for Conversion and Tics, and Ingeborg Visser, clinical psychologist/psychotherapist for children and youth.
A conversion disorder involves disruptions in motor and/or sensory functions that cannot be explained by a neurological defect. Examples include paralysis, tremors, or epileptic-like seizures. The absence of a neurological explanation is essential for diagnosing a conversion disorder. Marleen: “The chance that, after careful neurological examination, a neurological cause is still found for a condition diagnosed as conversion is about 4 percent.”
Hypnosis
In treating conversion disorders, Marleen Tibben and Ingeborg Visser use hypnotherapy combined with behavioral therapy. Marleen: “The beauty of hypnosis is that a patient relaxes through hypnosis. At the same time, under hypnosis, you can alter perception. For a patient with a tremor in the arm, for example, you can make that arm feel very heavy under hypnosis. This causes the tremor to disappear. By practicing this often, you eventually achieve cue-conditioning. The tremor disappears by thinking about making the arm heavy.”
Associative Connections
According to Marleen, hypnosis works because it creates a kind of bypass in movement control. “The starting point for the treatment is Kihlström's dissociation theory. This theory assumes a break between implicit and explicit information processes. Problems are experienced particularly in explicit control, while indirect information processes remain intact. You see the same thing, for example, when you can't recall a familiar person's name due to fatigue, stress, or lack of sleep. Even though you know the name well, it just won't come to mind. Continuing to think about that name often helps little. It's more useful to use a different search strategy, such as asking yourself where you know this person from or what they do in daily life. These search strategies use other implicit, associative connections and are often successful in solving the problem. The effect of hypnosis seems based on this; it establishes alternative, implicit associative connections.”
Poor Reputation
Marleen regularly trains professionals and sees an increase in the number of rehabilitation centers and institutions working with hypnosis and behavioral therapy. Nevertheless, hypnosis still has a poor reputation. “For many outsiders, it still feels too vague. But treating conversion disorders is essentially a behavioral therapeutic treatment. What matters is that within that treatment, you seek an incompatible response. You then teach this incompatible response through hypnosis. Eventually, a patient can evoke that incompatible feeling even without formal hypnosis. The rest of the treatment consists of shaping techniques.”
Research
Currently, there is hardly any research available on the effectiveness of treatments for conversion disorder. Marleen: “For pseudo-epileptic seizures, a good RCT has been done showing that cognitive behavioral therapy is effective. Other studies are limited or of moderate quality. Moreover, the absence of suitable measurement instruments makes research difficult.” The HSK Expertise Center for Conversion Disorders has started a pilot study on the effectiveness of hypnosis and behavioral therapy. “So far, the results look very promising. As many as 73 percent of patients fully recover. In the remaining patients, there is often a severe conversion or involvement of neurological complaints as well.”
Faker
In addition to research on effective treatments, more attention is needed for conversion disorders to normalize them. Ingeborg: “Monique van der Vorst is a well-known athlete who spent a long time in a wheelchair. In the media, she was nearly torn apart for supposedly being a faker. That's very harmful.” Patients with unexplained somatic complaints often feel not taken seriously. If there's no diagnosis, nothing is wrong. Ingeborg: “But there is something wrong. You don't imagine something you can't see.” Yet the diagnosis can also be challenging. Marleen: “The neurologist can be important for accepting the diagnosis. If they say, ‘I have good news for you, it's nothing neurological,’ that can help patients.”
Collaboration
Although the treatment is purely psychological, the HSK Expertise Center for Conversion Disorders collaborates extensively with neurologists. Marleen: “Every month, we hold intervision sessions where we discuss all patients whose progress is slower. A neurologist is always present. Besides discussing treatment progress, this collaboration with neurologists is also based on the scientific world. ‘Historically, research on conversion disorders has mainly been neurological. Psychological research is only available to a limited extent.’” Unfortunately, not all neurologists are equally well-informed about conversion disorders. Marleen: “There are still neurologists who tell patients: it's all in your head. Or worse: you have to learn to live with this. How terrible is that when we see patients improve in ten sessions?”