Megan said:voyageur said:...My blood Ferritin came out high at 341 ug/L and she said that as such, the government will now pay for a full iron panel workup – so back to the hospital and more revolving doors back to the Lab to give more; which is helping me in small stages to get rid of blood at least. She said that if the results are such and such, the gov will then allow for gene tests. However, the good news is they will help me out with a routine of taking pints and monitoring my blood as applicable...
The last part is probably all you actually need. Do you have to jump through the other hoops first, or can you start decanting now? Apparently a major use for the DNA test is to deny treatment. It can't tell you with certainty if you have HH and it can't tell you if you don't. I mean it's interesting to know if you have one of the known mutations, and knowing that can provide extra incentive to go through treatment, but it isn't a direct measurement of the potential problem at hand -- iron overload -- where decanting blood does provide a direct measurement. I have ordered my own personal genetic testing, that I can choose to share with my doctors or not, mainly because I am curious.
Also, remember that taking repeated blood draws to measure iron status can have a "normalizing" effect, so that "full iron panel" might not tell the full story.
That was interesting about the repeated blood draws, it seems like so little, yet can see what you mean. It will be interesting what is revealed with the latest test. Thanks for the genetic perspective, too.
Psyche said:That iron is really messing up with your metabolism. Yeah, decanting iron is a priority.
Forgot to mention that the physician wanted to take my blood pressure, and it was spot on. Have been at times however been super tired, having a couch nap after work. Also, have recently stopped the Vit C routine until the iron results were known. In the IE book, Rebeca talks about Nicotine being a
Yes, decanting is the priority. It will either happen at the local hospital or will drive the 300 km. to get it done.
Edit: Changed from carrier to source.
Also, what is it about the "metabolism" that i can feedback to the physician, in terms of language, to help to expedite quickly their referral process to decant blood based on the Ferritin 341 ug/L result?