Recovering from Arthritis
- Thread starter ClaudiaYG
- Start date
Yes it is an antibody that indicates autoimmunity.
My antinuclear antibody is positive and in high ranges, that with treatment has not changed much.
Meeting the teacher was a blessing, she is Uruguayan living in Mexico.
Finding teachers who themselves have an illness can be more empathetic, more committed to their students and caring.
Sometimes my muscles do ache from the exercise but it's not unbearable it usually goes away the next day.
Some exercises are adapted for example to the mobility of my shoulders, which I can't demand too much from.
Hello everyone!
On Friday I had an appointment with my doctor for my 6 month checkup and I had a blood test.
Two markers of the disease which are antibodies have gone down, they are still positive but they are still going down.
C-reactive protein (CRP) is still low.
What is a little high is the Immunoglobulin G (IGG), my doctor recommended 15 days of Deflazacort 12 mg, then 15 days more with only 6 mg and repeat the blood test.
I have no physical pain, no joint pain, I have been feeling very well.
The only thing is that I got some nodules on my fingers that I had already had before, these nodules do not cause me any pain. The doctor says that it is synovial fluid and that it may be because that part of my fingers is weak and as I use my hands more because I have no pain, the synovial fluid comes out (sorry if I do not explain well, but that is how I understood the doctor) These nodules can disappear on their own or be removed by a traumatologist, and another reason is that there is inflammation, which in blood is seen in the IGG but not in the CRP.
If you have any recommendations to lower the Immunoglobulin G other than what my doctor prescribed, I will read them.
The treatment I continue with is Leflunomide 20 mg per day, omega 3, vitamin d3 and k2, vitamin c.
I have responded very well to the treatment because I have had no inflammation in the liver and I have no decrease in white and red blood cells, etc., proving that I am not exposed to infections.
The autohemotherapy treatment is finished after almost 2 years without interruption, the doctor says that after a certain time it is no longer as effective.
Definitely the autohemotherapy helped tremendously, I saw how the first 6 months of my treatment without the medication drastically decreased the markers of the antibodies, it did not decrease them to the negative but it helped a lot.
The doctor applies mesenchymal stem cell therapy from the umbilical cord, they don't have to do anything to me, the lab sends the stem cells and the doctor applies them intravenously.
The doctor's proposal is 150 million stem cells, distributed in 3 shots of 50 million each.
I have not decided yet whether to do this therapy, I am still reading more about it, I want to be sure because it is expensive.
I started reading again Laura's thread about her experience with stem cells, although the procedure is a little different.
I would like to know your opinions, if you have done this therapy or if you have people close to you who have done it and what were their experiences.
I still go to my pilates classes, 3 times a week, I would like to go daily but I know that I need to recover because there are days that the exercises are intense that I get a little sore especially in my abdomen and those days my husband is forbidden to make me laugh
. I love pilates!
Thanks for reading me, hugs to everyone!!!
On Friday I had an appointment with my doctor for my 6 month checkup and I had a blood test.
Two markers of the disease which are antibodies have gone down, they are still positive but they are still going down.
C-reactive protein (CRP) is still low.
What is a little high is the Immunoglobulin G (IGG), my doctor recommended 15 days of Deflazacort 12 mg, then 15 days more with only 6 mg and repeat the blood test.
I have no physical pain, no joint pain, I have been feeling very well.
The only thing is that I got some nodules on my fingers that I had already had before, these nodules do not cause me any pain. The doctor says that it is synovial fluid and that it may be because that part of my fingers is weak and as I use my hands more because I have no pain, the synovial fluid comes out (sorry if I do not explain well, but that is how I understood the doctor) These nodules can disappear on their own or be removed by a traumatologist, and another reason is that there is inflammation, which in blood is seen in the IGG but not in the CRP.
If you have any recommendations to lower the Immunoglobulin G other than what my doctor prescribed, I will read them.
The treatment I continue with is Leflunomide 20 mg per day, omega 3, vitamin d3 and k2, vitamin c.
I have responded very well to the treatment because I have had no inflammation in the liver and I have no decrease in white and red blood cells, etc., proving that I am not exposed to infections.
The autohemotherapy treatment is finished after almost 2 years without interruption, the doctor says that after a certain time it is no longer as effective.
Definitely the autohemotherapy helped tremendously, I saw how the first 6 months of my treatment without the medication drastically decreased the markers of the antibodies, it did not decrease them to the negative but it helped a lot.
The doctor applies mesenchymal stem cell therapy from the umbilical cord, they don't have to do anything to me, the lab sends the stem cells and the doctor applies them intravenously.
The doctor's proposal is 150 million stem cells, distributed in 3 shots of 50 million each.
I have not decided yet whether to do this therapy, I am still reading more about it, I want to be sure because it is expensive.
I started reading again Laura's thread about her experience with stem cells, although the procedure is a little different.
I would like to know your opinions, if you have done this therapy or if you have people close to you who have done it and what were their experiences.
I still go to my pilates classes, 3 times a week, I would like to go daily but I know that I need to recover because there are days that the exercises are intense that I get a little sore especially in my abdomen and those days my husband is forbidden to make me laugh
. I love pilates!Thanks for reading me, hugs to everyone!!!
Hi @claudia, first of all it’s so good to read that you are feeling well and have no pain!
I had mesenchymal stem cell therapy in Germany exactly 4 weeks and 1 day ago for Grade IV osteoarthritis in both knees and my foot. The stem cells were first harvested from my belly fat by liposuction, then mixed with blood plasma the doctor extracted from my arm, and the mixture was then injected in both knees and foot (which was really painful). All in all the procedure took less than 2 hours, and the cost amounted to 6K Euro in total (3K per knee and the foot was complimentary).
The doctor said that it takes 4 months for the stem cells to do their work, so it’s still relatively early days, but I can already say that the difference is nothing less than remarkable. Even though there is still plenty synovial fluid, especially in the left knee, the range of motion is already much wider and the pain has decreased tremendously. Not once have I had the ‘arthritis pains’ if you know what I mean. I can even walk up and down stairs normally without any pain at all, I can hardly believe it. I was very tired for the first 3 weeks after the procedure, that is becoming less now. It’s like I can even feel the cells working; there are strange, uncomfortable sensations all around the knee joints and in my foot and toe. The doctor said that's all normal. I’d like to think that means that the cells are growing into cartilage. I do take it very, very slow, which is hard, but I feel it's important so the stem cells can work optimally (don't know if that's true, but that is my instinct).
I had no idea what to expect as I didn’t know anyone either who had had such a procedure apart from what I read online from patients, which were always success stories. In my case though, I wanted to postpone knee replacement surgery for as long as possible, and this was really my only option. The doctor said that if I wear the special insoles that he had made for me at all times, I am good for another 6 years, which would be fantastic. After those 6 years, the procedure is repeatable, which would also be fantastic.
BTW, according to the instructions the doctor sent me before the procedure, one cannot take NSAIDS, paracetamol, aspirin from 2 weeks before until 1 week after the procedure. I decided not to take any of those things until the 4 months have passed though.
So all in all, my experience with stem cell therapy so far is very positive, I hope this helps a bit and I wish you all the best for whatever you decide to do, big hugs to you
I had mesenchymal stem cell therapy in Germany exactly 4 weeks and 1 day ago for Grade IV osteoarthritis in both knees and my foot. The stem cells were first harvested from my belly fat by liposuction, then mixed with blood plasma the doctor extracted from my arm, and the mixture was then injected in both knees and foot (which was really painful). All in all the procedure took less than 2 hours, and the cost amounted to 6K Euro in total (3K per knee and the foot was complimentary).
The doctor said that it takes 4 months for the stem cells to do their work, so it’s still relatively early days, but I can already say that the difference is nothing less than remarkable. Even though there is still plenty synovial fluid, especially in the left knee, the range of motion is already much wider and the pain has decreased tremendously. Not once have I had the ‘arthritis pains’ if you know what I mean. I can even walk up and down stairs normally without any pain at all, I can hardly believe it. I was very tired for the first 3 weeks after the procedure, that is becoming less now. It’s like I can even feel the cells working; there are strange, uncomfortable sensations all around the knee joints and in my foot and toe. The doctor said that's all normal. I’d like to think that means that the cells are growing into cartilage. I do take it very, very slow, which is hard, but I feel it's important so the stem cells can work optimally (don't know if that's true, but that is my instinct).
I had no idea what to expect as I didn’t know anyone either who had had such a procedure apart from what I read online from patients, which were always success stories. In my case though, I wanted to postpone knee replacement surgery for as long as possible, and this was really my only option. The doctor said that if I wear the special insoles that he had made for me at all times, I am good for another 6 years, which would be fantastic. After those 6 years, the procedure is repeatable, which would also be fantastic.
BTW, according to the instructions the doctor sent me before the procedure, one cannot take NSAIDS, paracetamol, aspirin from 2 weeks before until 1 week after the procedure. I decided not to take any of those things until the 4 months have passed though.
So all in all, my experience with stem cell therapy so far is very positive, I hope this helps a bit and I wish you all the best for whatever you decide to do, big hugs to you
Hello Laurs.The doctor said that it takes 4 months for the stem cells to do their work, so it’s still relatively early days, but I can already say that the difference is nothing less than remarkable. Even though there is still plenty synovial fluid, especially in the left knee, the range of motion is already much wider and the pain has decreased tremendously. Not once have I had the ‘arthritis pains’ if you know what I mean. I can even walk up and down stairs normally without any pain at all, I can hardly believe it. I was very tired for the first 3 weeks after the procedure, that is becoming less now. It’s like I can even feel the cells working; there are strange, uncomfortable sensations all around the knee joints and in my foot and toe. The doctor said that's all normal. I’d like to think that means that the cells are growing into cartilage. I do take it very, very slow, which is hard, but I feel it's important so the stem cells can work optimally (don't know if that's true, but that is my instinct).
Thank you for sharing your experience with me, I'm glad you are feeling improvement.
The mesenchymal stem cells are from the umbilical cord, that means they are not collected from my body.
I don't know if it is better to have them from my body or from the lab.
Anyway, I am still thinking about whether or not to do the procedure.
I hope you continue to improve your knees and feet.
Str!ke
Padawan Learner
@ClaudiaYG, it’s pretty good to hear you’ve been getting a lot better and that things are working out for you.
FWIW, 4 days ago a relative had her second shot of 75 million Stem Cells, and her first shot was about 2 weeks ago, for a total of 150 million cells. Hers were Mesenchymal Stem Cells from umbilical cord, specifically from Wharton’s Jelly, plus 6 billion Exosomes for synergy, all intravenously.
Her intention was to get the Stem Cells after a Periodontal surgery to aid in gum and bone regeneration, but for various reasons, things didn’t go as planned and had to get them before the surgery.
So, it’s hard to gauge how well it would have worked after the surgery, but other benefits that she would like to have are, but not necessarily indicated for: lower fasting glucose, less insomnia, improvement in fecal incontinence, improvement in some kidney impairment, less pain and better circulation in her legs when walking, more energy, less brain fog, better memory, maybe less anxiety and maybe something favorable in her periodontitis.
They said the benefits could take up to 3 months to show, so it’s too soon to say, but so far she hasn’t noticed favorable changes. She has felt tired and had headaches.
About Rheumatoid Arthritis, the nurse told her:
For joint pain, they put the Stem Cells locally, injected in the joint and have had good results. If anything, two patients had temporary pain in there, which happens more in obesity, but subsided after a few days. Given this way, it can also increase the range of movement. He said they usually come and then go out happily with the results.
For autoimmunity, they give a form of autohemotherapy – *EBOO – which can regulate, up or down, the immune system so that it functions correctly and 50 million Stem Cells IV with exosomes, all done 3 times every 3 months to see the difference. But he couldn’t answer whether doing that cures it completely.
(*EBOO stands for Extracorporeal Blood Oxygenation and Ozonation. It’s a device that does Major Autohemotherapy in which about 3 liters of blood are withdrawn, filtered, ozonated, and in this clinic, the blood is also irradiated with Ultraviolet light and then recirculated back to you. Costs $900 USD there.)
And he says that autologous (meaning from the patient) Stem Cells are a bit traumatic to obtain, and you don’t know the quality – it’s variable –, nor quantity – maybe it’s about 80 million cells, and possibly more expensive; whereas from umbilical cord you know it’s from a young tissue with optimal regenerative potential, and he says good clinics give you a certificate of analysis so you know for sure the quantity and purity.
The downside, however, is that you cannot know whether it comes from a mother who had the COVID vaccine… He had a patient that wanted to avoid that, so he recommended to him autologous from adipose tissue.
He also said that Stem Cells are more effective when administered in separate sessions and not all in one session.
Sometimes there are adverse reactions to intravenous Stem cells. Most of the time, they are temporary and resolve within minutes to a few days, like low-grade fever, chills, increased heart rate, tremors, nausea, pressure on the chest, but they monitor your heart rate and if it increases your heart rate they slow down the infusion and for the other reactions, they give an antihistamine (Avapena IV) or Hydrocortisone, and Metamizole IV for tremors. None of that happened in her case.
Also told her to not use NSAIDs, for 48 hours because it reduces the efficacy of the Stem Cells.
For a limited offer, she paid for the procedure about $8k USD for the 150 million Stem Cells alone in Tijuana, Mexico, but it increased to $9.8k because their protocol involves giving an EBOO before each shot of the Stem cells and a Meyer’s Cocktail plus DMSO IV afterwards, for a stronger effect. They now say the Stem Cells alone have increased to $13.5k for 155 million cells.
Thank you for sharing your experience of arthritis, it’s amazing autohemotherapy did a whole lot to you.
I hope that whatever decision you choose, it works out for you and you get much better. I wish you very well.
Thank you for sharing your family member's experience.
Yes I have been thinking about the Covid vaccine thing as it interferes with the umbilical cord and stem cell thing, I think I need to get more clarity on that issue or talk to my doctor if they can get them out of my tissue.
I told my doctor that I have been doing hyperbaric chamber sessions and he suggested doing a few sessions before I put the cells in and after I put them in.
The lab the doctor works with also gives the certificate of purity and quantity.
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