Verneuil's disease AKA Hydradenitis Suppurative

Sunrise said:
I suffer from Verneuil's disease and I have a question about the Osmogel . In the excipients, there is "benzododecinium bromide". Is it healthy to use knowing that bromine is a halogen ? And, if this is not the case , can we replace it with water compresses and magnesium sulfate ? (as Osmogel is 99% magnesium sulfate)

I would use the second option. However, if you have had better results with the Osmogel in the past, I would not be afraid of using that if it avoids a serious boil. You can later detox the bromide with salted water and iodine.

My 2 cents!
 
Gaby said:
Sunrise said:
I suffer from Verneuil's disease and I have a question about the Osmogel . In the excipients, there is "benzododecinium bromide". Is it healthy to use knowing that bromine is a halogen ? And, if this is not the case , can we replace it with water compresses and magnesium sulfate ? (as Osmogel is 99% magnesium sulfate)

I would use the second option. However, if you have had better results with the Osmogel in the past, I would not be afraid of using that if it avoids a serious boil. You can later detox the bromide with salted water and iodine.

I agree. From what I've heard at least, Osmogel is usually pretty safe. The excipients shouldn't be such a problem, because Osmogel pulls "stuff" out of your body, instead of penetrating the skin. But maybe your recipe is better. You could try it first on a tiny area, so that you make sure not to get any bad reactions. I hope you have a good doctor you can consult for Verneuil.
 
Thank you for the advice.
I'll try Osmogel and continue iodine and salt water . Even if I can take only 1 drop of Lugol 5% per day for now. I was diagnosed by a professor of dermatology in a University Center Hospital. I saw him just once, after my biggest crisis and I have not been back for monitoring. He gave me a treatment of docycycline, 1 tablet in the evening for 6 months and in case of crisis, amoxicillin 6g per day the first 3 days and 3 g for 7 days. I didn't take the treatment because the only thing that had worked previously with antibiotics was fucidin cream ( fusidic acid), taken locally, on skin.
 
Maat said:
Don't forget to take zinc gluconate in sufficient amount too.

I take 50mg of zinc picolinate per day. Is gluconate better ? I can't find if gluconate is better than picolinate anywhere in the forum. Could you tell me where I can find this information on the forum please ?

Laura said:
And a probiotic enema.

Oh ! Ok, I suppose this should help with a lot of health problems but I don't understand why I can't find this information using the Forum search mode.
 
Sunrise said:
Maat said:
Don't forget to take zinc gluconate in sufficient amount too.

I take 50mg of zinc picolinate per day. Is gluconate better ? I can't find if gluconate is better than picolinate anywhere in the forum. Could you tell me where I can find this information on the forum please ?

Laura said:
And a probiotic enema.

Oh ! Ok, I suppose this should help with a lot of health problems but I don't understand why I can't find this information using the Forum search mode.

I think Sunrise, that all the thing started here:http://cassiopaea.org/forum/index.php/topic,13371.2750.html
Page 56, response#2755.

_Laura:
Citation de: worldbridger le août 01, 2016, 11:53:34 am
Anyway, at the same time I got a recommendation to a doctor who is a specialist in chronic pain (who also said I have fine fiber neuropathy) who went to the US in the 70s and his teacher was the one who came up with method called ”blistering”, she treated John F Kennedy and Lyndon B Johnson who both suffered from chronic pain. Then the method faded away when Big Pharma started their opiode campaign.

So, the first doctor put me on Gabapentin and the other one started treating me (local anesthetic and Saroten to put me in deep sleep), Saroten (25-50 mg) helped me feel like I really had been sleeping for the first time in 2 years.

I was feeling some sort of hope, then things started to get worse again. So here I am. Running out of time, energy, money, and hope.

Today four books arrived in the post and all of them were about the brain and its relationship with all kinds of disorders including autoimmune, lyme's infections, general decline, etc. One thing that came up in TWO of these books (haven't skimmed the other two yet) was enemas. In one, the coffee enema was recommended for sorting out the vagus nerve. In the other, probiotic retention enemas were recommended for straightening out autoimmune conditions usually caused by taking antibiotics early in life.

Here is a site that talks about this:
http://wholehealthchicago.com/2015/05/18/on-good-bacteria-enemas-and-your-health/

And an excerpt.
Citer

Microbiome bacterial mix
A poor mix of bacteria in your microbiome can increase your risk for a diverse selection of conditions, including:

Autoimmune disorders such as rheumatoid arthritis, Type 1 diabetes, and multiple sclerosis.

Mood disorders including chronic anxiety and depression. A very readable source of information is GAPS (Gut and Psychology Syndrome).

Susceptibility to intestinal inflammation (irritable bowel syndrome, ulcers, ulcerative colitis, Crohn’s) and colon cancer. Some gastroenterologists are treating these conditions by giving enemas containing stool material from a healthy donor, a process called a fecal transplant. If your doc recommends one, consider a DIY approach to save yourself $10K.

Learning disabilities, including ADD and ADHD. In one recently published article, researchers gave a group of newborns an enema of good bacteria, another group no enema. Thirteen years later, in the group that didn’t receive the probiotic enema, the ADD/Asperger rate was 7%. In the probiotic group: 0%.

Obesity and Type 2 diabetes

Autism. Some lab experiments using mouse models for autism have shown promising results with probiotics, and some nutritional physicians and autism support groups are encouraging this. However, the probiotics suggested are so potent they do require a doctor’s prescription.

Lyme Disease. Our physicians recommend a low-volume retention enema using an extremely high-potency, prescription-only probiotic containing nearly a trillion bacteria.


So, since I'm suffering rather severe pain and disability at the moment from an injury, I thought I'd give it a whirl: double whammy, coffee followed by probiotics.

I watched some video testimonials on youtube about it and it sounds almost too good to be true. We'll see. I've got nothing to lose, and neither do you. _
 
Sunrise said:
Maat said:
Don't forget to take zinc gluconate in sufficient amount too.

I take 50mg of zinc picolinate per day. Is gluconate better ? I can't find if gluconate is better than picolinate anywhere in the forum. Could you tell me where I can find this information on the forum please ?

From what I know, picolinate is good too. If I said gluconate, it is because in my country, this one is very easily available, contrary of picolinate. I would say if picolinate works well for you, so go ahead.

My two cents. :)
 
Maat said:
From what I know, picolinate is good too. If I said gluconate, it is because in my country, this one is very easily available, contrary of picolinate. I would say if picolinate works well for you, so go ahead.

Yes, whatever you can get a hold of should work.

Zinc can cause stomach aches in those with low stomach acidity. It is best tolerated if taken with foods.
 
Thank you for the precisions.
I already take zinc with meals.
For several days now, I use Osmogel but it doesn't work for me. The abscess is still red, warm and hard... I'm going to try hot water compresses with magnesium sulfate and an essential oil mix of lavender, tea tree, bay tree and ajowan, but if it still doesn't work, I'll use fucidic acid. I wash it with foaming Povidone iodine and I'm wondering if the povidone iodine or Lugol could have a positive effect on these abscess ?
 
Sunrise said:
For several days now, I use Osmogel but it doesn't work for me. The abscess is still red, warm and hard... I'm going to try hot water compresses with magnesium sulfate and an essential oil mix of lavender, tea tree, bay tree and ajowan, but if it still doesn't work, I'll use fucidic acid. I wash it with foaming Povidone iodine and I'm wondering if the povidone iodine or Lugol could have a positive effect on these abscess ?

Usually povidone iodine is used to clean abscesses and the like. It is an excellent anti-microbial. Hope you get relief soon!
 
Sorry to hear that Sunrise!

Is this a recurrent boil, or is it the first time one appears in that area? I ask because, according to Dr. Guillem, once they are recurrent, not undergoing surgery can make it more complicated later if they form fistulas (when they reoccur, they can already have small fistulas, but the more you wait, the deeper they can go).

I seem to remember you saying that you were in France. In that case, you can probably contact that doctor. He's great! We have talked about him several times in this thread, and interviewed him:

https://www.sott.net/article/277125-Behind-the-Headlines-Hidradenitis-Suppurativa-aka-Verneuils-Disease-Interview-with-Dr-Philippe-Guillem

If I'm mistaken and you are not in France, he might still be able to help, since he's working with doctors all over Europe.

Something you might want to try is cold baths, and probiotic enemas. It's not a local solution, but it can help your body a lot with fighting the infection!
 
I'm sorry to hear you're going through this Sunrise.

Another thing that worked for me was to sink the area (or cover it with a soaked bandage) with magnesium chloride. You can find the powder in any drugstore here, but I don't know if it is available to you. That seems to help with the draining process, it softens the boil until it drains all by its own. From what I heard from others and what I experienced, it will be painful until it drains, so I hope you find some relief soon!

Besides from that, I think that what Chu says is very important. If it is a recurrent boil it might be very hard for it to heal completely and it can bother you from time to time. So checking with Dr. Guillem might really be a good thing to do if you're willing.

I hope you get well soon! :hug2:
 
A FB friend of mine posted this today, and I thought that some of you might be interested in participating:

https://docs.google.com/forms/d/e/1FAIpQLSc_O2VIP8sD2W8Rja1Gn3HznxpiEQ99CVXg5IY6B7NGa5nTdA/viewform

HS Food Trigger Survey
A survey by patients for patients. Conducting our own research. This survey will be posted for 30 days.

You are being invited to participate in a research survey titled HS Food Triggers. This study is being done by the HS Alliance Group (Teresa Kirkman). You were asked to participate in this study because you or a minor child in your care has Hidradenitis Suppurativa.

The purpose of this survey is try and find commonalities and patterns in food based triggers. If you agree to take part in this survey you will be asked basic questions with predetermined answers to choose from. It will take you approximately 30 minutes to complete.

You may not directly benefit from this research; however, we hope that your participation in the study may help add another piece to the puzzle that is Hidradenitis Suppurativa.

We believe there are no known risks associated with this research study however, as with any online related activity the risk of a breach of confidentiality is always possible. To the best of our ability your answers in this study will remain confidential and anonymous.

Your participation in this survey is completely voluntary and you can withdraw at any time by simply leaving the survey
 
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