I'm on the Medical Merry-Go-Round

I will. I've actually had to use a TENS unit in the past, and I've had electrical stim before, for a back injury. all the muscles in my back were tetanizing, the chiropractor told me. They tried it with me years ago also for the RSd situation after I broke the bone in my foot. I'll bring it up with this new doctor on Thursday. Thank you for suggesting it!
 
I hope this doctor is competent. And I want to voice my emotional support to you as well, Lisa, all the best! :hug:
 
Lisa Guliani said:
I will. I've actually had to use a TENS unit in the past, and I've had electrical stim before, for a back injury. all the muscles in my back were tetanizing, the chiropractor told me. They tried it with me years ago also for the RSd situation after I broke the bone in my foot. I'll bring it up with this new doctor on Thursday. Thank you for suggesting it!

Great - any clinic that does those can also do 4Pole Interferential Current. The 4 poles allow you to stimulate the entire internal area of the foot in a single treatment. The same goes as you move the 4 electrodes up to the lower legs and thighs. Moving the stimulation up the legs, I think, is good since you may not know where the key blockages are. In my mother's case, I know they begin in the upper thighs.
 
Hi Lisa. You didn`t mention if you still had your tens unit. I have one with 4 electrodes if you need one or a second one. I could send it to you if need be.
 
LQB said:
Lisa Guliani said:
I will. I've actually had to use a TENS unit in the past, and I've had electrical stim before, for a back injury. all the muscles in my back were tetanizing, the chiropractor told me. They tried it with me years ago also for the RSd situation after I broke the bone in my foot. I'll bring it up with this new doctor on Thursday. Thank you for suggesting it!

Great - any clinic that does those can also do 4Pole Interferential Current. The 4 poles allow you to stimulate the entire internal area of the foot in a single treatment. The same goes as you move the 4 electrodes up to the lower legs and thighs. Moving the stimulation up the legs, I think, is good since you may not know where the key blockages are. In my mother's case, I know they begin in the upper thighs.

Here is a 4P-IF protocol for the feet: www.carerehab.com/Protocols/IFC_Protocols/Edema_IFC.pdf

I use a swept beat frequency over 3 different frequency ranges and time intervals:
80-100Hz for 20 min
5-30Hz for 10 min
1-5Hz for 10 min
 
Hi Lisa,

I would like to briefly relate the experiences my 2 Brother's and I endured for over 9 years with my Mother, who had the same type of symptoms, you have expressed. The problems with the feet, inflammation, sensitivities to hot & cold, problems with varicose veins, thinning of the blood vessels from the hip down, due to arterial plaque, benign cysts, etc.

My Mother went through the routine of the revolving door of Specialists. Each had their own cure and involved surgery. One would take care of the Carpal Tunnel, another, two cysts on her right wrist (partly due to she was an avid Dollie crocheter.) A vascular surgeon offered to make a small incision on the right side hip to insert a tube down the main artery of the leg to open any blockage. Inbetween, there's blood tests, pulse testing, x-rays, etc. and consulting with her GP in Port Jervis.

They decided to take care of the Carpal Tunnel first, that messed her up for about two months before she had "some feeling" in both hands. Unable to do dolies, she went to yarn for afgans but that was a limited endeavor.

Because some time had lapsed from the first visits with the Specialists for the leg and feet problems, a second round of various testing was "again" performed, including x-rays and bloodwork. A date was set for the Vascular Surgeon at CMC. We were informed, the surgery went well but after 5 months and little improvement, other testing show massive arterial scarring from the surgery. They would have to build up her system before another operation was performed. 14 Months later, both legs had gone numb with intermitten spasms affecting the muscles, including abdominal. Emergency surgery was scheduled at CMC. It was a massive operation with a vascular team working on her. 2 & a half weeks in ICU and 4 days in a room before arrangements were made for private care and a visiting nurse. Then we had her transfered home in Pike County in an ambulance. It took her 7 months to heal and be able to use the push walker around the house. She never really - fully recovered. The amount of med's was just nuts! Within 2 years, there was some progress walking with a cane. She was now, 72.

Then one evening, my Brother called stating, "She had a check-up at CMC that they estimated would take about 20-25 minutes" and if I could make arrangements at work to be able to meet them at 9AM. My Mother proudly walked into Lobby with her cane with my Brother closely guarding her from behind. She asked me, if I minded going to Schiff's with them afterwards, so they could pick up some meat to take home in the coolers and I agreeded. She was in a good mood. Then we got interrupted by a nurse who was excorting her into the elevator (no wheelchair) to an upper floor. The nurse would return her when the examine was done. So, we sat near the coffee shop watching the elevator doors. Half hour turned into an hour and we took the elevator up "in search of Mom." Reception desk directed us to the waiting room, someone would would be in to talk to us. Hour & 10 minutes later, a nurse comes in an states, "You can see her now, follow me." We enter an ICU with several recovery beds, Mom's directly ahead - but when she draws the curtain open at the foot of the bed, my Brother loses color and passes out on the floor in front of me. Then I see her and it's something out of an old horror flick. She's sitting up, bracing her left hand behind her. The face is contorted and grayish white. I remove the blue sheet and her whole right side from under the breast and all done the leg is blackish purple with funny yellow straks. She whispers, I want to die - the pain - is..... and she squirming trying to hold herself up. I see my Brother in a chair and non responsive with an attendant next to him with orange juice. He has diabetes. My Mother's bed is directly in front of the nursing station , 5 steps away and the girls behind it are casually chatting. I approach them for some explanation - what going on and where's the pain medication - What the Hell is going ON? Where's the Dr.? I need to see him NOW! And go back over to my Mom. She doesn't want me to touch her, the pain is that great. I will never forget her face and the agony. Nurse comes up to me, "Dr. was on his way back to Honesdale but has turned to come back to Scranton, I need to prep her for surgery." And they roll her through another door. I ask, "Are you going to give her something for the pain?" I hear someone yell, YES. I help my Brother get up and we head for the elevator, to go down to the Lobby so he can get something to eat and take his insulin. We both have calls to make.

What started out as a brief 20-25 minute office visit at 9AM - turned into sureal event by 7:30 that night in an ICU? In all that time, no one could give us any information - as to what had happened and why? After 11 that night, we finallY got to see the Dr. He explained, they had noticed a blockage and decided to clear it. There were complications. When we saw her in ICU, she was coming off the anesthesia and the morfin drip hadn't yet taken effect. He would be happy to answer our questions, handed us his card and directed the nurse to take us to see her. She was in a private room, partially awake and being spoon feed ice water from a cup. I took over while my Brother put his head down on the bed next to her shoulder and cried unmericfully. At some point, we were directed to leave. I informed them, I would be in the waiting room, if needed. My Brother elected to take the hour or so drive to Pike County to be with my Stepfather.
Around 6 AM, someone woke me up and directed me to my Mother's room. She had died sometime during the night. What a F*$%ing mess! She died alone.

My other Brother had to fly in for the Funeral. My Stepfather denied my request for an autopsy, saying she has suffered enough and nothing was bringing her back. Any amount of talking, couldn't change his mind.

Since that time, we have learned of several other's in our social circles who have experience some or all the same symptoms and revolving door medical testing and have found many who have successfully used an alternative, noninvasive method to manage and control for relief. I have a supply on hand, in case any of us need to use it. It's called Serrapeptase and very inexpensive.

This is the website _http://serrapeptase.info/
 
angelburst29 said:
Hi Lisa,

I would like to briefly relate the experiences my 2 Brother's and I endured for over 9 years with my Mother, who had the same type of symptoms, you have expressed. The problems with the feet, inflammation, sensitivities to hot & cold, problems with varicose veins, thinning of the blood vessels from the hip down, due to arterial plaque, benign cysts, etc. ...

Thanks for taking the time to tell this angelburst29.
 
Thanks for sharing angelburst29. That was a horrific ordeal that you and your family went through, especially your poor Mother. My heart goes out to you. I will also keep Port Jervis in mind never to use the facility there. I`m 15 min away. The information you shared for alternative treatment is good to know.
 
Angelburst29, I am so sorry for your loss and for what your family has gone through. What a horrible experience for all of you, I can only imagine the suffering you and your family have endured. I feel for you all and will check out that website you linked above. Thank you so much for the suggestion and for sharing your experience. It has to be very painful to talk about this, so please know I really do appreciate that you did - and thank you for doing that.

Here's an update on what's going on with me:

I had my appointment with the Internal medicine doctor yesterday. I had written out two pages of notes from the suggestions made by Psyche and others to me here, and also a list of every supplement I'm taking, and what I'm doing with the sauna blanket, the DMSO cream, and the sandals. She said the supplements are all okay for me to take, "but" they're not going to correct what is wrong with me. She said the vessels that are closed off in my feet are going to stay closed. I assume she's talking about the capillaries. She started in with the smoking lecture ( only she was taking a different, nice guy approach, compared to the other doctors I've seen.) I told her I've quit to try to avert another long lecture, but i don't think she really believed me. In fact, she focused alot on the whole subject of smoking for much of my visit. They never seem to know anything about organic tobacco or any of the medical studies that show that there are health benefits to smoking, when I try to discuss this with them. They brush off any comments I make. It gets frustrating because as a patient, I'm supposed to listen to and believe everything they say, and trust that they know what they're talking about, and it seems like, just because i don't have an MD after my name,they all behave like I couldn't possibly know anything, since I'm just the 'patient'. I was hoping this internal med doc would at least be more receptive in that regard.

She said she wants me to 'think about' quitting smoking and then go back to her and tell her I am ready to really quit, ( she must have smelled it on my clothes, I guess?) and then she intends to either put me on the patch or prescribe Chantix.
Christ. I used to smoke with the patch on when I was in college ( Yeah, dumb, but I've done alot of dumb things in my life.)
I've heard some troubling things about Chantix, so I don't want to go on that either.

She drew me a little diagram of her 'plan' for me: quit smoking either cold turkey or via a patch or chantix, take a baby aspirin every day and also the Procardia ( which i haven't been taking).
She prescribed me a pain killer too, which I haven't filled - Tramadol.
I also had alot of blood work done yesterday, per the instructions from Psyche, which I stressed to this doctor I needed to have done, which nobody thus far had ordered. So they did that before I left the clinic.

I have my appointment with the vascular surgeon next Thursday and I'm kinda scared about that, since he made a point of telling me how if this isn't better by then, he willl want to put me in the hospital. I have no intention of being admitted to the hospital so they can flood me with a bunch of steroids and cytotoxic meds. I'm going to make some excuse if he tries to push that. I have to go back and see the internal medicine doctor again on March 5th. It's the earliest appointment I could get. I'm curious to see what my lab test results will be and if I have some sort of autoimmune disease or virus going on too.

The Internal med doc also said that she wants me to lower my "bad cholesterol' even further. I tested at 125, which is not a bad number.
She wants me to try and lower that number below 100 within the next 3 or 4 months or she says she will put me on cholesterol medicine.
What's that? Statins? There's no way I'm going on statin drugs.

She told me that I could have a stroke while lying in my bed or have a silent MI. "How would you like that to happen, Lisa?"
Yeah well, I could get hit by a truck stepping off the curb, too. I wouldn't like that much either....

I was hoping she would be more receptive than she was to more alternative treatments, but she basically said the same stuff the vascular doctor said, only she is checking for other causes too. My cholesterol is NOT out of whack and I am not diabetic. My "good" cholesterol was 71, which is elevated. She even said my cholesterol is good, so I don't know why she's even talking about putting me on cholesterol meds down the road.

The pain in my feet got worse last night when I went to bed. Particularly my right foot. I slept some until the pain woke me up. Tried hanging my foot off the bed in several ways, and that didn't help. Tried elevating it more, didn't help. Finally had to get up because i couldn't stand it and I popped another couple of Vitamin E pills and rubbed some more DMSO cream on my feet. Still hurts alot, but it's much worse lying down today than it was yesterday, for whatever reason. I'm worried.
...

Re: tens unit. No, I no longer have a tens unit, and I forgot to ask the doctor about that yesterday. But I'll be seeing her again and will bring that up at the next appointment. Thank you for the suggestions!
 
She prescribed me a pain killer too, which I haven't filled - Tramadol.

The pain in my feet got worse last night when I went to bed. Particularly my right foot. I slept some until the pain woke me up. Tried hanging my foot off the bed in several ways, and that didn't help. Tried elevating it more, didn't help. Finally had to get up because i couldn't stand it and I popped another couple of Vitamin E pills and rubbed some more DMSO cream on my feet. Still hurts alot, but it's much worse lying down today than it was yesterday, for whatever reason. I'm worried.


Pain will wear you down and wreck your ability to think, Lisa. Unless you have a known issue with the med in question, take your pain medication, if for no other reason, to give your spirit a break from the grind of it. :hug2: :hug2: :hug2: :hug2:
 
Lisa Guliani said:
....
Re: tens unit. No, I no longer have a tens unit, and I forgot to ask the doctor about that yesterday. But I'll be seeing her again and will bring that up at the next appointment. Thank you for the suggestions!

Lisa,

I can package up the 4P-IF device I have been using on my mother, and send it to you. Its very easy to use, and you can use the protocol I have programmed. If it gives you some relief, it may buy you some needed time to deal with all the docs and their recommendations. Just let me know, and I'll fire it off to you.

You might ask one of the more knowledgeable docs if the condition of your feet contraindicates the use of elec-stim. As far as I know, the only major contraindication is the placement of electrodes over blocked surface-level veins (varicose).
 
Gimpy said:
She prescribed me a pain killer too, which I haven't filled - Tramadol.

The pain in my feet got worse last night when I went to bed. Particularly my right foot. I slept some until the pain woke me up. Tried hanging my foot off the bed in several ways, and that didn't help. Tried elevating it more, didn't help. Finally had to get up because i couldn't stand it and I popped another couple of Vitamin E pills and rubbed some more DMSO cream on my feet. Still hurts alot, but it's much worse lying down today than it was yesterday, for whatever reason. I'm worried.


Pain will wear you down and wreck your ability to think, Lisa. Unless you have a known issue with the med in question, take your pain medication, if for no other reason, to give your spirit a break from the grind of it. :hug2: :hug2: :hug2: :hug2:

Be careful with the Tramadol. My mother took that (once!) for back pain after a fall - it knocked her out and she ended up in a babbling trance-like state that she had no memory of. The best for the pain (imo based on what we did for my mother) is straight codeine with no additives like acetaminophen or other anti-inflammatory. Docs are reluctant to prescribe straight codeine - but they can do it.

Added: Docs like aspirin because it "thins" the blood. The enzymes serrapeptase and nattokinase are far better choices (imo) - and if you take them, you do not want to add asprin due to possible interactions.
 
LQB: Thank you, but please hold off on sending anything until I talk to the doctor. I'm thinking that might help with the lower back pain ( I think it's my SI joint) that's causing some pain that's radiating into my right hip and down my leg. Not sure if it would help my feet but I'm going to ask the doctor next Thursday when i go. I will get back with you and let you know.

Re; Tramadol. I was prescribed this for pain several years ago. It makes me very sleepy/groggy and alters perception of pain, but doesn't touch all pain. it didn't do anything for the nerve pain I was taking it for. Normally these days, I do not take ANYTHING from Big Pharma and I'd like to keep it that way if i can help it.
That said, I may end up having to fill this prescription today. I chose to take the Vitamin E and do the DMSO instead. But last night was not good.
Another thing about last night: I could feel something moving inside my legs - I know that sounds weird - but I wondered if that was blood flowing in my vessels. That's what it felt like to me - like something deeper within the legs, moving - in multiple places straight down the leg toward the feet. I was hoping it wasn't a clot or anything. Incidentally, I don't have varicose veins. Thank goodness.

Oh yeah - the doctor told me yesterday: "Your feet are not totally blocked or you would need surgery today." But the pulses are still very weak.
 
Lisa Guliani said:
That said, I may end up having to fill this prescription today. I chose to take the Vitamin E and do the DMSO instead. But last night was not good.
Another thing about last night: I could feel something moving inside my legs - I know that sounds weird - but I wondered if that was blood flowing in my vessels. That's what it felt like to me - like something deeper within the legs, moving - in multiple places straight down the leg toward the feet. I was hoping it wasn't a clot or anything. Incidentally, I don't have varicose veins. Thank goodness.

Oh yeah - the doctor told me yesterday: "Your feet are not totally blocked or you would need surgery today." But the pulses are still very weak.


I don't think it sounds weird. That might account for the pain, which might end up being a good thing - just speculation on my part though. Great to hear you didn't need surgery yesterday.
 
Hi Lisa,

Lisa Guliani said:
LQB: Thank you, but please hold off on sending anything until I talk to the doctor. I'm thinking that might help with the lower back pain ( I think it's my SI joint) that's causing some pain that's radiating into my right hip and down my leg. Not sure if it would help my feet but I'm going to ask the doctor next Thursday when i go. I will get back with you and let you know.

[...]

Oh yeah - the doctor told me yesterday: "Your feet are not totally blocked or you would need surgery today." But the pulses are still very weak.

I asked my rolfer yesterday about using a Bemer in this kind of situation -- she and a couple other people have started testing it with people at a naturopath's office here in town, and have had some good results with stimulating circulation, including one patient with Raynaud's. I know you haven't been diagnosed with that, but since the symptoms are comparable, I just wanted to mention it as one more thing you might ask your doctor about at your next appointment. She said that if she was looking at possible loss of her feet, she'd definitely want to give it a try, so take that FWIW.
 

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