Hi all from another sufferer of CFS (started 1996),
I wonder how many forum participants have either FM or CFS !! There were quite a few super moderators replies in this thread and Laura's of course. Maybe a bit of a subliminal pattern there between folks who have these conditions and a tendency to become more "awake"????? Coincidence or logical progression?
Anyway, great tip about the baking soda. I have spent SOOOO much money on all sorts of stuff I should be taking in recent months and to learn there are some terribly cheap and effective "grandmother's remedies" is great.
The comments about a higher prevalence amongst FM/CFS sufferers as looking much longer than their real age and increased psychic ability is also very interesting - are there any references to chase on that? Most people routinely guess my age as ten years younger than it really is. Psychic? - well, I've had some experiences that certainly would fall into that realm but I would not say I was very psychic - I go to experienced readers to get messages (I don't trust what comes into my head).
Also found the articles that mycoplasma as a weaponised pathogen to be VERY interesting. I was diagnosed with mycoplasma in Jan 96; from there I picked up mono (gladular fever) and after that, Epstein Barr - all between Jan and June. Never been the same since the mycoplasma and after that, my previously low chlorestorol went up a point a year until I reached almost ten (in Australian measurement - normal is below 5)) and was put on Lipitor. I also learned somewhere that mycop. feeds on chlorestorol, so what better way for a pathogen to survive is to influence the body to produce more of what it feeds on.
What has always struck me since the diagnosis of mycop. was made is how did I possibly pick this up??? At the time, I lived in Sydney and had stepped on some powerful toes in the PTB group. I was extroardinarily stressed and had made arrangements to get out and move interstate. The move was postponed for a week because I was too ill to travel. However, I lived in the US until the end of 1989. Has anyone accessed a copy of the report referenced in the article which mentions that this pathogen dispersal was conducted over 32 American cities? I'd like to find out which cities those were.
I am still very prone to really unsusual diseases such as viral meningitis, psitticosis twice, helicobacter, Peudomonas and invasive strep, plus cardiovascular issues, etc. - haven't had a cold or flu since I stopped eating meat in 1974 but I have had a bewildering array of other things which provides some diversion and interest to my GP! After I had a stroke in July 2010, my weight started to skyrocket. I finally went for an iridology session and have implemented some drastic diet changes since.
Since the end of October, I have had to eliminate all gluten and dairy and take a myriad of supplements and amino acids including magnesium, B's, calcium, flax, liver tonics, probiotics, etc. I also picked up oxygen tablets to help cleanse/detox the colon which are helpful (I think). All that was fine but apparently that wasn't enough.
Also been told since to eliminate rice, corn, potatoes, anything starchy, all fruit, all grains, all carbs as much as possible.
I also have to include insulin resistance in this diet so where I do have any kind of carb, I have to have protein.
Basically, my diet has been reduced to almost entirely eggs, nuts, beans, the occasional fish and vegetables. I've refused to eliminate all fruit though as I can't see how this will help. I'm eating pomegranites, berries, tomatoes and avocados. I have the occasional carrot juice with nuts.
I also have been trying to detox the colon and liver but really, when you add the focus of all these diets together, it is completely disorienting because one says "no fruit" while the other says "eat lots of fruit". I'm not really sure of what to eat anymore, but after four months, any further limitations will send me over the cliff. I have lost at least a little weight so far (6 kilos/13 pounds) so something is better. Is this all just healing crisis (Herxheimer reaction)?
After four months of special diets and lots of supplements, I really feel like crap. The supplements seem to aggravate my liver rather than heal it (feels sore and inflamed after taking the supplements.). My CFS brain fog and fatigue is worse now than when I first picked up the disease. I do volunteer work from home and my productivity with that is substantially reduced to the point where I don't want to continue this work anymore, despite how important is for the environment. I'm cranky and feeling morose. I don't know how to sort out all this advice or which types of "detox" should be done in what order! Does anybody have any suggestions what might be a better way to procede? :(
Thanks and cheers.
